The Challenges in Sharing My Diagnosis

Sometimes, it is so discouraging to have PF. … Okay, having PF is discouraging A LOT of the time. I had a hard experience this week, as I’ve had many times before. I bet you’ve had experiences, too. Since my diagnosis with PF a little more than…

This video from Scleroderma and Raynaud’s UK is about Sue Dryden, a professional landscape gardener who has worked at the prestigious Hampton Court Palace in Surrey, England and the world-famous Chelsea Flower Show. MORE: Seven common symptoms of pulmonary fibrosis. Sue suffers from…

Inventiva Pharma recently announced that their abstract titled “PAN-PPAR Agonist IVA337 is Effective in the Prevention of Experimental Lung Fibrosis and Pulmonary Hypertension” has been selected as one of the best papers that will be presented at the 15th International Workshop on Scleroderma Research. The event will take place…

If you have a chronic lung disease, one of the best things you can do to improve your health and slow down the progression of the disease is to quit smoking. However, after years of smoking, it can be extremely difficult to break the habit. One of the ways to help yourself…

Interstitial lung disease (ILD) is not a lung disease itself but a group of several lung conditions, including idiopathic pulmonary fibrosis (IPF). You can see the difference between IPF and other interstitial lung diseases by looking at the affected lung tissue under a microscope. According to WebMD, ILDs attack the interstitium, the tissue and space around the lung’s air sacs. MORE: Interstitial lung disease remains major a diagnostic challenge This large group of diseases is known for creating progressive scarring of the interstitium which can cause progressive lung stiffness that will end up affecting the patient’s breathing…

William T. Schmidt, a veteran healthcare advocacy executive, is the new president and chief executive officer of the Pulmonary Fibrosis Foundation. Schmidt, who takes over Aug. 14, succeeds Patti Tuomey, who led the foundation’s fight against pulmonary fibrosis from 2010 until February 2017. “After a comprehensive search process, the…

If you’ve been reading my columns the past few months, it is no secret that I’m noticing a huge difference in my physical abilities as the progression of my idiopathic pulmonary fibrosis (IPF) charges on. I often write about how tired I am physically, how emotionally drained I…

To be considered eligible for an organ transplant, patients will often go on a long and difficult journey. Candidates are put through a series of tests and actually receiving an organ will include a lot of waiting and hoping. To make the road to transplant a little easier, we’ve put together some advice from…

Ofev (nintedanib) is an anti-fibrotic drug used in the treatment of pulmonary fibrosis (PF) to help to slow down the progression of the disease. It was approved by the FDA in October 2014. MORE: Nine steps for managing pulmonary fibrosis. The online patient platform Patients…

Pulmonary fibrosis patients experience significant practical and emotional problems from their disease, according to a nine-country Boehringer Ingelheim survey. More than 150 people took part in the survey, which exposed the worries that idiopathic pulmonary fibrosis patients have about their disease’s irreversible progression. Sixty-one percent of patients said they were either…