Do you ever feel that sharing difficult news about yourself is a burden on your friends? I have been struggling a little with this recently and, as a result, I am feeling very alone. Writing this column is not easy. To explain further, I have an upcoming…
Why I Am Reluctant to Share IPF Struggles
If you’re a member of the PF community, you’re well aware of how little the general public knows about the disease. It’s important that we all work together to raise awareness. Awareness results in more fundraising efforts, which means more dollars, which means more research, and eventually, hopefully, that means…
A new Mayo Clinic study has demonstrated new evidence of the link between the biology of aging and idiopathic pulmonary fibrosis (IPF). The study, “Cellular senescence mediates fibrotic pulmonary disease,” appeared in this month’s issue of Nature Communications and point towards new possible directions for therapies targeting IPF. “Idiopathic pulmonary fibrosis…
There’s a new online resource to help idiopathic pulmonary fibrosis (IPF) patients and their caregivers learn more about the condition and be more proactive in their treatment. Find out more about the future of pulmonary fibrosis treatment. The interactive program is a joint venture between the Pulmonary Fibrosis Foundation, ProPatient,…
I sat down to open my mail a few days ago and received what felt like a slap in the face. Shame hurts. My local utility company sent me a report letting me know that I was using 161 percent more…
When you have a chronic illness such as pulmonary fibrosis, it is only natural that you may find yourself spending a lot of time thinking about some of the important life events and milestones that you may not get to experience. Learn about the challenges patients with pulmonary fibrosis and…
In an article for Shape magazine, journalist Kylie Gilbert slams the use of cigarettes in fashion shoots featuring some of the world’s most recognizable celebrity models. Here are four things you can do to help prevent pulmonary fibrosis. A recent photo spread featuring reality stars and models Kendall…
With Rare Disease Day 2017 coming up tomorrow (Tuesday, Feb. 28), I have been thinking a lot about responsibility. As someone living with a rare disease (idiopathic pulmonary fibrosis, or IPF), I am feeling a bit of responsibility around my efforts to raise awareness for this disease, and…
Aeolus Pharmaceuticals has started a Phase 1 clinical trial to evaluate a new version of AEOL 10150 as a treatment for delayed effects of acute lung radiation exposure(Lung-ARS). The open-label, single-center Phase 1 trial will evaluate the safety, tolerability and pharmacokinetics in healthy individuals of increasing doses of AEOL…
If you have a chronic illness like pulmonary fibrosis it’s easy to focus on the future instead of living your life in the moment. What’s the future of pulmonary fibrosis treatment? Find out more. Our resident columnist Kim Fredrickson knows this all too well and in her latest article “Don’t Let Your Diagnosis…
