When living with an invisible and chronic illness, such as idiopathic pulmonary fibrosis (IPF), I suppose it’s inevitable that you will have some really hard days (no matter how much you try to find the good in each day). To put it bluntly, some days just suck.
Strategies for Pulmonary Fibrosis Patients’ ‘Hardest Days’
If you or a friend or loved one has recently been diagnosed with pulmonary fibrosis (PF), you probably have a lot of questions. Very little is known about this chronic lung condition, despite the fact that approximately five million people suffer from it worldwide. We’ve put together a list of important facts about pulmonary…
When idiopathic pulmonary fibrosis (IPF) patients experience sharp flares and sudden disease worsening, the bacterial make-up of their respiratory tract changes, a study has found. The research, “Changes in the respiratory microbiome during acute exacerbations of idiopathic pulmonary fibrosis,” compared patients whose condition had worsened because of an…
Telling other people you have a chronic disease such as pulmonary fibrosis is never easy as our resident columnist Kim Fredrickson explains in her latest post, “How Do You Tell Others You Have a Terminal Lung Disease?“. Understand how coughing affects the lives of patients with pulmonary fibrosis. Telling family, friends,…
Increased deposits of iron in immune cells called macrophages were found to be independently correlated with pulmonary vascular resistance (PVR) in patients with idiopathic pulmonary fibrosis (IPF), according to a recent study. Findings of hemosiderin-laden (an iron-storage complex within cells) in macrophages in the lungs of IPF patients might also be…
I have a love/hate relationship with my supplemental oxygen. I use liquid oxygen at a flow of 8 litres per minute, 24/7, as well as an oxygen concentrator. I’m grateful to have it, for without it my organs would fail.
This video introduces the new online platform from Medtep IPF, designed to help patients with idiopathic pulmonary fibrosis manage their disease. The platform keeps a record which can be directly accessed by their healthcare providers. Hear the stories of four idiopathic pulmonary fibrosis patients. The program can…
A very interesting situation unfolded the other day as I was purchasing something from our local music store. Typically speaking, when most people either see me with my oxygen, or learn that I am living with a terminal illness, they are not sure what to say. They may…
Winter is a perilous time if you have a compromised immune system, but you can’t stay alone inside for four months. You have to get on with your daily life, and just hope you don’t succumb to other people’s bugs and illnesses. However, there are some foods that can help you avoid catching a cold…
Measuring disease-associated factors in sputum may be a less invasive way of tracking molecular changes in idiopathic pulmonary fibrosis (IPF) than bronchoalveolar washing, which involves sucking material from the lungs with a syringe, according to a study. Researchers found several factors in IPF patients at higher levels than in healthy people…
