Pulmonary fibrosis (PF) is a chronic lung condition where scarred tissue makes the lungs unable to deliver oxygen to the blood stream effectively. The more scarred the lung tissue is, the more severe the condition will be. Find out about six pulmonary fibrosis diagnostic tools. The scarring of lung tissue…
Is Pulmonary Fibrosis Treatable?
AdAlta biotech announced that its lead drug candidate, AD-114, reduced fibrosis in both the liver and lungs of mice with fibrotic conditions. AD-114 is a novel first-in-class drug candidate called an i-body. This bioengineered antibody mimics the shape and key stability features of specific domains of shark…
Jordan Howard, leading rusher for the Chicago Bears, is launching a fund-raising challenge to honor the 10-year anniversary of his father’s death due to pulmonary fibrosis (PF). The campaign will benefit the Pulmonary Fibrosis Foundation (PFF) and the PF community. The challenge relies on a simple chain reaction: Every participant…
What’s it like taking care of someone who’s had a lung transplant? In this video from Gifted Life, 26-year-old Lauren and her mom explain what it’s like looking after someone who has a chronic lung condition and the differences between pre- and post-transplant caregiving. Learn more…
I have a love-hate relationship with the need to be strong on this journey with idiopathic pulmonary fibrosis. It is important to be strong, but I think it is equally important not to show, or attempt to show, strength, especially when you don’t feel very strong. People sometimes…
https://www.youtube.com/watch?v=Jy7f9wATrlI This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, as a result, suffers from pulmonary fibrosis. Wondering how you can better manage you pulmonary fibrosis?…
As we head into this New Year I wanted to take some time to thank all the caregivers who help us live with pulmonary fibrosis. It is easy for me to be aware of all I’m dealing with as a result of this illness, and unintentionally minimize the…
Diagnosing pulmonary fibrosis (PF) is complicated. Symptoms can mirror those of other lung disorders like asthma, pulmonary hypertension or chronic obstruction pulmonary disease (COPD). Because of this, six different diagnostic tools are needed for an accurate diagnosis of PF, according to the American Lung Association. 1. Chest x-ray…
In this video from Barnes-Jewish Hospital shared in April 2013, we meet Randy Cooke, a 50-year-old pulmonary fibrosis patient who underwent a double lung transplant. Find out what to expect after a lung transplant. Randy wasn’t surprised when he received his pulmonary fibrosis diagnosis–it was the…
It would be easy to make this column about the difficulties that come with living with IPF. In fact, several possible topics for this post were about just that, including: How exhausting the holidays are with IPF; how shopping for the holidays in large crowds of people sends…
