“You have idiopathic pulmonary fibrosis.” January marks six years since those five words changed my life. Late in 2022, I began a long overdue project renovating my home office, which had been delayed by procrastination. While doing so, I came across a journal I had started writing around the…
A Journal’s Take on My Idiopathic Pulmonary Fibrosis Diagnosis
The Pulmonary Fibrosis Foundation (PFF) has added Cedars-Sinai Medical Center to its Care Center Network (CCN), a group of medical centers specializing in treating and supporting people with pulmonary fibrosis (PF). Cedars-Sinai is one of seven medical centers the foundation recently added to the network, bringing the total…
Last January, I started a column with the following: “’Every day is a new adventure!’ This is often my response when someone asks how I’m doing. It also seems appropriate when looking forward to what 2022 may hold for me.” Coincidentally, as I sat…
The Pulmonary Fibrosis Foundation (PFF) has added seven new medical centers to its Care Center Network (CCN) to improve pulmonary fibrosis (PF) patients’ nationwide access to specialized care. The expansion brings to 81 the number of care network facilities in 35 U.S. states. Six sites were added in…
Pliant Therapeutics’ experimental oral anti-fibrotic therapy bexotegrast has received orphan drug designation from the European Medicines Agency (EMA) as a potential treatment for idiopathic pulmonary fibrosis (IPF), the company announced. EMA gives this designation to therapies that have the potential to improve care for conditions that affect fewer…
With just a few days remaining before Christmas, not much has changed this year in the search for a cure for pulmonary fibrosis (PF). Scientists continue to pursue theories searching for a clue that will lead to a cure or even more effective therapies. But even research that does…
Curveball is a baseball term, but it also can apply to life when something surprising or unexpected happens. It’s been several months since my last column, and in that time, life has thrown me a curveball. I’ve been constantly battling my illness, and so much has happened. I am…
Medicom Technologies is partnering with the Open Source Imaging Consortium (OSIC) to extend access to anonymized clinical information — key for the detection and diagnosis of rare diseases, such as idiopathic pulmonary fibrosis (IPF) and other interstitial lung diseases (ILDs). Both organizations…
Vicore Pharma has launched the pivotal part of its COMPANION study to test Almee, a digital app designed to help people with pulmonary fibrosis (PF) cope with anxiety. Almee is a digital cognitive behavioral therapy (CBT) developed by Vicore…
I have a love-hate relationship with pulmonary rehabilitation. With rapidly declining lungs due to idiopathic pulmonary fibrosis (IPF), it’s hard to exercise. Despite this, exercise is one of the most important things a patient with IPF should be doing consistently, so I try to love it. I…
