I was only 59 when I was diagnosed with idiopathic pulmonary fibrosis. I still had so many things to do, and many life experiences were waiting for me. I hadn’t yet walked my daughter, Heather, down the aisle. I didn’t have grandchildren. There were places my wife, Susan,…
Following My Doctor’s Advice, I Didn’t Abandon My Life Goals
The U.S. Food and Drug Administration (FDA) has given permission for Angion Biomedica to launch a Phase clinical 1b trial to test its experimental anti-fibrotic medication ANG-3070 in people with idiopathic pulmonary fibrosis (IPF). Angion is planning to launch the trial soon and expects that results will be…
Sandoz has launched a generic version of Esbriet (pirfenidone) for people with idiopathic pulmonary fibrosis (IPF) in the U.S. The new generic is available now via specialty pharmacies and there is a $0 co-pay program for eligible patients, according to Sandoz. “Sandoz is putting patients first…
As a millennial, I came of age with the internet. I remember the thrill of choosing the perfect screen name for AOL Instant Messenger before going to camp. (luv4pigs31, if you were wondering.) In eighth grade, I created my first social media account. Back in the early 2000s, Myspace was…
Ofev (nintedanib), a medicine approved to treat progressive fibrosing interstitial lung disease (PF-ILD), now is available for public reimbursement in Ontario, Quebec, New Brunswick, Newfoundland and Labrador, Alberta, and the Northwest Territories. The therapy also will be reimbursed through the Non-Insured Health Benefits (NIHB) program, which provides eligible First…
I would not consider myself an anxious person. However, as I straightened my hair and did my makeup last Saturday morning, I realized the person reflected in the mirror was riddled with anxiety. I was attending a funeral for my friend’s mom, Anne, who had idiopathic pulmonary fibrosis (IPF),…
Coping with a rare disease can be lonely. After I was diagnosed with lymphocytic interstitial pneumonia (LIP) in 2019, my world crumbled and shock set in. I started searching for answers on the internet, looking for any research about my illness, and talking with other patients. It’s a…
You see them before and after you see a doctor. They are often the first person you see upon waking from anesthesia. They hold your hand during the difficult part of a procedure. They see you at your weakest state and help return you to health. Sadly, in some cases,…
The U.S. Food and Drug Administration (FDA) has granted fast track designation to PLN-74809, now in a Phase 2 clinical trial, as a potential treatment for idiopathic pulmonary fibrosis (IPF). This designation is intended to help speed the development of treatments aiming to address unmet medical needs for serious…
A Russian military plane crash near Tetiana Zamorska’s home in Kyiv, Ukraine, was a sign that it was time for her and her family to leave. The treacherous, 34-hour pilgrimage that ultimately brought the group of eight by car to temporary accommodations in neighboring Poland last month was physically and emotionally difficult,…
