Columns

Handling the Holidays While Living with PF

The holidays are coming! They are a challenge to negotiate as a pulmonary fibrosis patient. Here’s some tips I’d like to share to make the most of the holidays while taking good care of yourself. It is normal to have a mixture of feelings…

Adjusting is Hard, So Take it Easy

I don’t know about you, but for me adjusting sure is hard. I just got back from a visit to University of California, San Francisco, for my six-month check-up at the Interstitial Lung Department. It’s one of three places in California where lung transplants (along with Stanford…

Well-intended, Infuriating Comments

I read an article yesterday in Pulmonary Fibrosis News that told about a woman who was diagnosed with idiopathic pulmonary fibrosis (IPF) in June. Her disease is progressing so fast that she needs a double lung transplant now – like now. She is on the transplant list, but doctors say that…

5 Tips to Keep Going on This PF Journey

Sometimes it is hard to keep going when you have pulmonary fibrosis The basics of living life and traveling are now such a challenge for me … like breathing, walking, being tired, having to bring oxygen and needing help. I recently attended a Writer’s…

Fighting for Oxygen

I recently had a victory in a fight for oxygen, and wanted to share what I learned through the process. I had to fight for oxygen … pretty basic need, right? Like many of you, I’m on supplemental oxygen 24/7. It’s been two years, and it has been a fight…

Remembering Significant Life Events Before IPF

Inspired by an article written by a wonderful writer, and talented individual who I’m lucky enough to call a friend, I have decided use this post and take a look back at what my life was like a year ago, before IPF. This feels significant in a few different ways,…

Life as a New IPF Patient

Welcome to my column! As indicated by its title, “Younger than 30: Living with IPF,” I am a 28-year-old female recently diagnosed with idiopathic pulmonary fibrosis and trying to adjust to life with a fatal and debilitating disease as a young adult with much on the go. One of the biggest,…

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