Being diagnosed with a life-threatening illness and learning to live with it is not for the faint of heart. There is an abundance of emotions that accompanies a diagnosis plagued by a grim prognosis and no cure. No one can prepare you for how it feels to hear the words,…
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Even before I was officially diagnosed with idiopathic pulmonary fibrosis (IPF), I could feel my health declining and my enthusiasm to complete yardwork diminishing. I always took great pride in my meticulously landscaped yard. When I moved into my wife’s house, I immediately tore up the yard, planted new…
This year, the central focus of my life has been my mom needing — and then receiving — a double-lung transplant. I’ve met a lot of people whose lives are also revolving around a lung transplant: patients and family members, pre- and post-transplant. Since my sphere is full of these…
Maintaining friendships as a young adult is difficult due to time constraints imposed by the demands of young kids, a busy career, or care of aging parents. We’re all “guilty” of getting wrapped up in the daily activities of our lives. It’s not that we don’t want to spend time…
I recently returned from a three-week vacation in Europe. On the trip, my wife, Rebecca, and I visited Poland, Italy, Greece, and Austria. I was anxious before the holiday and worried about transporting my medications across borders. I thought, “Will I become ill? Will I be able to physically handle…
No one really enjoys being admitted to the hospital, but for many patients living with a chronic illness, hospitalization is inevitable, and can bring both comfort and relief. At least, that has been my experience while living with idiopathic pulmonary fibrosis (IPF). There has been a lot of talk among…
Organ transplants are a trade-off. The patient receives a healthy organ or organs, but the price is chronic immunosuppression. The trade-off is made when there are no other treatment options, and only if the transplant is expected to be successful. I can’t tell you how many times I…
At some point in our lives, we’re all likely to face difficult decisions. They will force us to weigh out all the options, considering not only the pros and cons of each decision, but also the overall impact on our lives. Before I became sick with idiopathic pulmonary fibrosis (IPF),…
Advocacy and discussions about mental health on social media platforms feel very “trendy” at the moment. It’s a good thing — it is vital that we talk about mental health and raise awareness about the need to care for our minds as well as our bodies. As a patient living…
At some point in every person’s life, death becomes part of their story. The unexpected death of a family member or friend is traumatizing. You wake up in a world of grief and confusion, which you must confront and reconcile over and over again. There is no easy way to…
