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    • #15467

      As a patient living with idiopathic pulmonary fibrosis (IPF), I’ve become pretty accustomed to feeling mentally fatigued and physically exhausted majority of the time. While this is one of the most difficult symptoms of living with IPF, there is unfortunately nothing I can do about it but try my best to just “plug through” each day. However, sometimes my fatigue dictates what I feel like I am capable of and this is tough to accept.

      To explain further, without providing a lot of context because that would be boring; sometimes I don’t feel as though I can cope or deal with something important that needs addressing due to my fatigue. At my place of employment, there are a number of different interpersonal difficulties going on at the moment, which are caused by being in a constant state of change and fluctuation. Its my personal belief that change doesn’t bring out the best in anyone, and this is certainly the case at work right now. As I prepare to return to work after taking some time away, I’ve been reflecting on those interpersonal relationships and what it is that I need to do my job well. Unfortunately to uncover this for others, it’ll require some intense, likely emotional and potentially difficult conversations which I know will exhaust me. These need to happen for me to feel confident in my decision to return to work, I understand this, however, my fatigue makes this task so daunting even though I know it needs to happen.

      Not only do I know it is going to take a significant amount of physical energy to return to work for me, I am now aware that these conversations will be mentally exhausting and I just don’t want to do it. Its not that I don’t think they’re is important, or want to have those conversations that will ultimately help me feel better at my work place, but the thought of the emotional and physical energy I know its going to take is a deterrent altogether.

      Have you experienced this before: where the knowledge of how exhausting something is going to be acts as enough of a reason to not do it? 


      Maybe it just feels “easier” not to do it, given how fatigued you know you’ll be afterwards?  

      I’d love to hear from you!
      Charlene.

    • #15485
      David Collard
      Participant

      Have you ever tried increasing your oxygen levels?

      I find that if I turn the oxygen levels up it helps with moving around

      i usually am at 2.5 to 3 when sitting

      If I have to get up and walk I turn my oxygen levels up to 4

      this helps

      Dave

      • #15501

        Hi Dave,

        Thanks for writing and offering up this suggestion! I actually haven’t tried this, sometimes I’ll turn up my oxygen when I am in a coughing fit or having to walk up a hill etc, but I don’t often leave it up during the entirety of my exertion and I probably should. I wonder if this would help with my fatigue a bit, especially at work? I’m not sure which is worse, the physical fatigue or the mental exhaustion. Lately, with being so mentally exhausted I just want to say “I don’t care” to a lot of things because I don’t want to expend the energy on fixing or addressing something (ie. the politics at work between colleagues). I’m sure that isn’t the right thing to do, so maybe I’ll try to increase my oxygen throughout the day and see if that makes a difference as I am up and about more than I am if I am just at home…. good idea!

        Thanks for the suggestion, and I hope you’re doing well.
        Sincerely,
        Charlene.

      • #15521
        Chuck Harrison
        Participant

        Hi David ,
        Tried your suggestion , I’m usually at 3-4 , so I went up to 5 for a day or so , the down side at this time didn’t work for me , the up side is this may be something I could try again down the road .
        Thanks for the info
        Chuck

    • #15486
      Chuck Harrison
      Participant

      It does Charlene , for example this morning my doctors nurse called , all I could manage were yes or no answers ,that’s not me , but ipf it seems has stolen the show ( for now )
      Your friend ,
      Chuck

      • #15502

        Hi Chuck,

        Thanks for writing, although I’m so sorry you’re experiencing this as well! It is frustrating to say the least, isn’t it? Sometimes (actually, a lot as of late…) due to the mental exhaustion, I just put up this front of “I don’t care” to resolve anything extra because of the amount of emotional and mental energy it is going to take. That’s not me either, but neither is wanting to deal with the fatigue. Hope your day is going better today, and thanks for reminding me that I am not alone in so much of what I am experiencing…

        Warm regards,
        Charlene.

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