This topic has 2 replies, 3 voices, and was last updated 6 months, 2 weeks ago by Marianne.

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    • #19488
       linda waldschmidt
      Participant

      Does anyone know if the lung scarring is there by the time you are diagnosed. It sais this on the Mayo clinic web site. Is anyone else familiar with this. Also does anyone have discomfort in the middle of their chest especilly when exercising?

       

    • #19499
       Mark Koziol
      Keymaster

      Hello Linda, the scarring is the fibrosis. The scarring is there at diagnosis and before the diagnosis. The scarring is what causes you to cough and have a low oxygen saturation. The scarring restricts oxygen and blood flow. Hope this helps.

    • #19503
       Marianne
      Participant

      Linda –

      I was told last September 2018 that I had scar tissue in my lungs.  My pulmonary doctor tells me that my right lung is worse than my left lung.  Pretty sure my right lung has fibrosis in middle lobe as well as the lower lobe.  Also pulmonary doctor hears crackles when he listens to my lungs.  Soon I will start on OFEV and they return for follow up visit in 3 months.  Also doctoring with primary care and ENT.  No doctors appointments in June.  Yeah!!  That is really unusual for me.  I am happy to have a month without doctor visits.

      Hope you are having a good day.

      Marianne

    • #19895
       Susan Howitt
      Participant

      Linda Waldschmidt

      Only just seen your question re pain in the middle of the chest.  I have this almost permanently on breathing in, some days are worse than other but I cannot put a cause to this though today is warm 25° and high pollen count and the pain is much more noticeable.

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