Managing Exhaustion & Improving Sleep with Pulmonary Fibrosis.
A common symptom of any lung disease is fatigue, and pure exhaustion. This is something that all patients living with pulmonary fibrosis (PF) can relate to, and it is one of the most frustrating things about our disease.
Regardless of having a restful nights sleep, which very few patients with PF get on a regular basis; the chronic under-oxygenation caused by this disease can leave not only our bodies feeling fatigued, but also our minds. It is very difficult to function when you’re left feeling so tired on a regular basis, and some days it seems almost impossible to carry out daily tasks such as working, socializing or running errands.
As a patient living with IPF, I thought I slept relatively well but I still wake up feeling exhausted on a regular basis. As result, I’ve recently begun questioning whether or not I am getting quality rest while I am sleeping, ie. entering the deep sleep (“REM” cycle) each night. I am looking at options to start tracking this more closely, although the only sleep tracker that I am currently aware of is the Fitbit app and I am unsure how accurate this is. I am also looking into ways that might help me improve the quality of sleep I am getting each night.
As a PF patient: do you have any tips & tricks to ensure you’re receiving quality sleep each night? Any routines that make sleeping more comfortable or restful for you? If so, please share with us!
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