Last week I had a follow up appointment with my local Pulmonologist, who brought up something a little unusual. For the most part, my appointment went well and showed some stabilization reflected in my Pulmonary Function Tests (PFTs) and some decline. Unfortunately, the highest decline was 8% on one test, which has me a little concerned but we talked about what I will need as a result of this decline and I feel a little better with a plan in place.
For now it doesn’t seem as though I will be adjusting my supplemental oxygen needs, even though this was offered, as I don’t really feel like its necessary. I’m currently managing well on my prescribed amount of oxygen, and don’t want to increase how often I need to use my tanks/POCs. I am to call my doctor directly if I ever feel as though I’m not getting enough, and he said he will adjust it right away. I am content with this!
One thing he did bring up though, which I thought was odd was a Methacholine test. Have any of you been offered, or taken this test following your diagnosis of IPF/PF? As far as I understand, this is a test to confirm asthma. I asked why he wanted to order a test that is focused on asthma, and he said it was to better understand how my airways react to certain allergins, likely contributing to the chronic, dry cough that I have consistently. I voiced that I thought this cough just came with IPF, and my doctor confirmed that it does but that sometimes other triggers can cause it and if those additional triggers can be treated, then there is a chance I’d be able to reduce the amount of coughing. From what I understand, I guess it would be like two things triggering an illness side effect and while one can’t be treated/reduced, another possible trigger can be, thus reducing the overall intensity of the side effect. Does this make sense to anyone else?
I wasn’t really sure what to say so I allowed my doctor to proceed with ordering this test, which will be set up within a few weeks. I guess it doesn’t hurt to try it out and see what it reveals, right?
Have any of you ever had this done?
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