Second opinion referral suggestions?
I am new to the forum. I am a 74 y.o. man living in Los Angeles. I was diagnosed with PF about 4 months ago by a Rheumatologist, who is working along with my Pulmonologist. I am a member of Kaiser. He said he thinks my ongoing scarring is due to an auto-immune response. I have been taking Cellcept for 4 months. I have also begun taking OFEV for almost 3 weeks. I have not had any serious side effects.
I am thinking I need a 2nd opinion. I understand that UCLA and Cedars-Sinai have research facilities for lung disorders. I am wondering if anyone on the forum has experience at either center, and could suggest a doctor at either place to try to connect with?
Also, can anyone recommend the forum for spouses and care givers? My wife is having a difficult time with this whole thing.
At this point I am feeling confused and alone.
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