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Using Social Media for Advocacy
There’s no doubt that social media is a powerful force in the modern world. It can be wielded for good or, let’s not say “evil”, but, uh, NOT so good. Over the past few years, amid political polarisation, emotionally charged headlines, and controversial opinions, I have struggled to find my voice online. I am nonconfrontational by nature, but I want to use my platform for good. I ache to open up and share my family’s story about IPF and lung transplant with my (albeit, small) online following. I have benefitted greatly from others’ bold vulnerability on social platforms, and wish to do the same. Problem is, I am scared to open up.
Have you used social media for advocacy? What’s been the most effective way to spread awareness of PF and/or organ donation topics? Do you ever encounter “internet trolls”? How do you find the courage to share your story?
For some reason, it’s easy for me to write columns, and talk openly about this part of my life with you all in the forums, but when it comes to social media? No thank you. If you’d like to read more of my thoughts on this issue, check out my latest column here. And all advice is appreciated 🙂
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