Amy
Forum Replies Created
-
Please send me the link. Thank you.
-
I saw it too. There’s not much out yet. Will ask at my next appointment at Inova Fairfax.
-
That’s the Holy Grail. It’s not available outside of medical facilities. If it were, every single one of us would have it. ????
-
Please sending you a hug the specifics. Is this really going to be on Thanksgiving?
-
Lol my phone sent you a hug. I’m asking for specifics.
-
-
I’m interested
-
Yes. I tied that for the same reason, but I could not handle the GI issues that persisted. I went back to 100 twice a day. Doing well now.
-
Yes, I tried to split dosages – valiantly! I was unable to tolerate the extra 50mg no matter how I did it. It was worth trying simply because a higher dose would conceivably be most effective. I’m finally back on 100mg twice daily. Try it. The FDA, in its infinite wisdom, means well but patients and doctors are living this. The same FDA has been holding back meds for ALS. ???? Work with your doctor and just do what you can live with.