Mike McCutcheon
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I was diagnosed with IPF March 2019 and was on Esbriet but made me sick. Tried lowering the dose but just didn’t work. In 2021 went on oxygen 24/7 and in Sept 2021 was admitted with pulmonary embolism in each lung and put on high flow oxygen. I was put on top of the lung transplant list got a new right lung on October 30th. I never really had a chance to decide as it was transplant or not be around much longer. I’m doing well lots of meds and visits and adjustments. But I’m alive and holding my own. I’m really tough and have a bring the heck on attitude which makes me feel good as my family knows I’m a fighter. I would transplant again any time as I owe them that. It would devastate them if I was gone. I’m a get mad not sad kind of guy. I say go for it give it your very best can do attitude
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I have had great results from AYR gel a OTC available at most drug stores
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I just got a right lung transplant on Oct 30, 2021. I was on high flow oxygen 24/7. It moved me to the top of the lung waiting list. My thought was in 3 months I’m in a Urn or have a new lung. Time will tell how long I have. I’ll have to wait and see. Doing well so far
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I take 3,000 mg Cellcept and 40mg prednisone and 6 Esbriet 267 mg per day. Had serious diarrhea but started Imodium a week ago and it went away
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I loop the canola around my neck like a rope. It stays there never drags on the floor
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Also diagnosed with Interstial lung disease on oxygen 18 hours a day. Going in to Columbia with the lung transplant tests next week. They will let me know if I qualify after 2 days of tests
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I have had a chronic cough for 8 years. Nothing had helped till prednisone started on 80mg per day for 2 weeks. After 2 weeks Dr dropped it to 60mg then 2 weeks later down to 40mg. Cough is now back and constant runny nose. Feet and ankles really swollen but hanging in