Prednisone and Self-image: Transplant Side Effects We Don’t Talk About

The University of California, San Francisco (UCSF), where my mom, Holly, received her double-lung transplant, has gone to great lengths to provide information at every turn on the transplant journey. The infamous blue binder contains everything you need to know about post-transplant life. UCSF’s approach to transplant…

It’s common for young adults in their early 30s to plan for their future. For some, this might include planning for a beautiful wedding or having a family. For others, it might mean traveling the world, buying a dream home, or landing the ideal job. My ideal future would include…

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme “A Glimmer of Hope,” the competition is a means to “visually express the hope that exists for people affected by…

As we launch into Pulmonary Fibrosis Awareness Month this September, I personally believe there’s a lot that can be done to educate others and to raise the profile of this cruel and life-threatening lung disease. I look forward to sharing in an upcoming column more tangible ideas about how…

In the U.S., idiopathic pulmonary fibrosis (IPF) mortality rates decreased from 2004 to 2017, a new study shows. The data suggests the decline might be partly explained by a decline in smoking, but further research is needed to better understand the factors contributing to this trend. The study, “Mortality Trends…