Canadian Health Officials Issue Safety Warning on Ofev After Liver Injury Cases

Health Canada has issued a safety warning on Boehringer Ingelheim’s idiopathic pulmonary fibrosis therapy Ofev (nintedanib) after patients in a number of countries developed liver injuries and one died. IPF patients should stop taking Ofev and seek medical assistance if they develop signs of liver damage, Canadian officials said. Those…

For patients living with idiopathic pulmonary fibrosis (IPF) or any chronic lung disease, it’s known that an acute exacerbation, illness or fluke decrease in lung function could drastically change their ability to breathe. Since this can and does happen for unknown reasons, there is often this sense of “living everyday…

There must be a better way! For those of you using supplemental oxygen, you know it is a blessing and a curse. It’s a blessing because without it we would die, but a curse because it is so difficult to access, use, and live with daily. Check out…

As we begin a new year, I want to wish all of you a happy and healthy 2018. I hope the holiday season was magical for you and that the year is off to a great start. Each new year, I like to reflect on the time…

It is safe to say that 2017 just wasn’t my year. It also seems that I can find solitude in saying that it wasn’t a great year in general, based on conversations with others. The hardest part of this year for me was the rapid progression of my…

If you’re an individual living with a lung disease, you’re likely very aware of how the weather can impact your ability to breathe. Typically, patients living with idiopathic pulmonary fibrosis (IPF) are impacted by extreme temperatures that often make it difficult to breathe. In the summer months, extreme heat can…

https://www.youtube.com/watch?v=SYssJOKfZ_U Being diagnosed with pulmonary fibrosis can be terrifying and confusing and often takes a long time to come to terms with. In this video from EmpowHER, pulmonary fibrosis patient Dyane talks about what she most fears about the disease and how PF has impacted her life. MORE:…