A higher fat-free mass index — a measure that takes a person’s muscle mass into account — predicts better survival in patients with pulmonary fibrosis, while body mass index (BMI) does not, according to a new study. Although researchers could not explain how body composition impacts disease progression, the findings may provide another…
Better Muscle Mass Tied to Better Survival in Study of Pulmonary Fibrosis Patients
Mindfulness seems to be the latest buzzword, with claims that adopting a more mindful approach to life can help with a myriad of ailments. But can it help patients with idiopathic pulmonary fibrosis? Find out about the five main factors for living well with pulmonary fibrosis. A new…
Pulmonary rehabilitation (PR) should be part of the treatment plan for any chronic lung disease, including pulmonary fibrosis. It’s a combination of exercise, breathing techniques, diet and education that aims to help give patients a better quality of life and be able to have more control of their symptoms. We’ve…
Hello Pulmonary Fibrosis Community! Technology is amazing! For a little over a year Facebook has been allowing its members to do live videos from their pages. I tried this out on my own Facebook page about three months ago, and am really enjoying being able to reach out and…
This video, shared by the Pulmonary Fibrosis Foundation, is of a webinar filmed at the PFF Summit: From Bench to Bedside held in Washington D.C. in November 2015. Find out more from the Bench to Bedside Summit about managing pulmonary fibrosis symptoms. Dr. Charlene D. Fell presents…
Researchers may have discovered a key mechanism underlying pulmonary fibrosis (PF) — the failure of a particular group of lung stem cells to regenerate, hindering the repair of lung tissue in PF. The study, “Hyaluronan and TLR4 promote surfactant-protein-C-positive alveolar progenitor cell renewal and prevent severe pulmonary fibrosis in mice,” was…
This is a plea for your help and guidance. I would love to understand the experiences of others as I try to navigate your thoughts and emotions when someone asks “What is “wrong with you.” It would be particularly helpful to hear from a young adult (up to…
The holidays are coming! They are a challenge to negotiate as a pulmonary fibrosis patient. Here’s some tips I’d like to share to make the most of the holidays while taking good care of yourself. It is normal to have a mixture of feelings…
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2014, Professor Vincent Cottin from the National Reference Center for Rare Pulmonary Diseases in Lyon, France, and Dr. Luca Richeldi from the University of Southampton in the U.K., talk about the importance of early diagnosis of pulmonary…
https://vimeo.com/133560286 In this PatientsLikeMe video shared in 2015, we meet Brian Kincaid. Brian had been diagnosed with idiopathic pulmonary fibrosis and turned to Patients Like Me for online support and information regarding the disease. He became a member of the organization’s team of advisors, offering support to other…
