Patients with pulmonary fibrosis who are active in taking care of their own health, frequently find themselves with better results in the long run. Here are a few notes to help you maximize self-care (source: Pulmonary Fibrosis Foundation website): Reach support groups. There are…
In late 2010, Barbara was diagnosed with idiopathic pulmonary fibrosis. Not having an accurate diagnosis, her doctors decided to star treating her for IPF. Demystifying Medicine shared this video where we can watch Barbara talk about her journey since her diagnosis and addressed common…
Scientists from the Karolinska University Hospital, Sweden, reported findings from the first year of a national registry of idiopathic pulmonary fibrosis patients (IPF), which showed that Swedish IPF patients have a poor quality of life and poor perception of their disease — despite a relatively modest level of disease severity.
In this video by Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, Dr. Toby Maher explains the outlook for patients diagnosed with idiopathic pulmonary fibrosis. He talks about the life expectancy averages after diagnosis, what the future of a patient will be like, advancements in medicine,…
Prof. Daniel Chambers from the Queensland Lung Transplant Service, in The Prince Charles Hospital in Brisbane, Australia, debunks a few myths about lung transplantations with some pulmonary fibrosis  patients and other patients with lung complications: Myth 1. “Lung Transplantations are experimental treatments.” Lung transplantation was revolutionary when it was…
A case report of a woman with pulmonary fibrosis and a rare telomere mutation raised the possibility that telomere-associated fibrosis can be observed without shortened telomeres. The study, “TINF2 Gene Mutation in a Patient with Pulmonary Fibrosis“, published in the journal Case Reports in Pulmonology, proposed that…
Pulmonary fibrosis is a channel dedicated to spreading awareness about this life-threatening heart and lung condition. Meet Mark, a father of two who shares his story of resilience and strength. In 2014, his health began rapidly declining and he found himself limited to his bed for…
Professor Jürgen Behr, from the University of Munich, Germany, talks in this video by Boehringer Ingelheim Idiopathic Pulmonary Fibrosis about idiopathic pulmonary fibrosis, describing what the disease is, how it affects patients and shares some useful insights about the ongoing processes in the lungs…
Researchers at Yale School of Medicine, Boston University School of Medicine, and other institutions applied an integrative genomic approach to study chronic obstructive pulmonary disease (COPD) and idiopathic pulmonary fibrosis (IPF) to uncover the possible shared biological mechanisms in the two disorders. Findings suggested a common genetic network to the…
Nebraska Medicine shared this video of Donna Jacobsen, of Winside, Nebraska, who was the first patient to be added to the lung transplant waiting list at Nebraska Medicine. Diagnosed with idiopathic pulmonary fibrosis in 2012, Donna first had a feeling something was wrong when…
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