Charlene is a fiercely independent 30-something year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.I feel vulnerable writing about this topic, but if this column opens the door for conversation, my discomfort will be worth it. I recently had a conversation with one of my colleagues about having kids. She is healthy, but I am living with a terminal lung disease called idiopathic pulmonary…
I often write about living with idiopathic pulmonary fibrosis (IPF) and what I’ve lost as a result of my diagnosis. It’s easy to write about because my life has changed drastically over the past three years. But I need to remember that the changes haven’t been all bad.
Do you ever wonder what your bigger picture looks like and what life lessons you’re meant to learn? I am aware that this is a very philosophical question to open a column with, but I can’t help but wonder about it after being diagnosed with a fatal lung disease. Since…
Learning to cope with a chronic illness is an ongoing process — and never easy. My entire world was flipped upside down when I was diagnosed with idiopathic pulmonary fibrosis (IPF) in April 2016. I didn’t know anything about interstitial lung diseases and felt bitter that I had to…
I’ve spent a lot of time reflecting these last few weeks. I don’t know why — I haven’t hit any special milestones such as a birthday or diagnosis anniversary. But I’ve been thinking about the adversity I’ve faced since my diagnosis with idiopathic pulmonary fibrosis (IPF) as…
Goal setting is an essential part of a balanced life. Regardless of whether the goals are related to fitness, finances, or learning a new skill, having targets gives you something to work toward and opportunities for improvement. I recently read a post titled, “8 Benefits of Goal Setting,” and…
Have you ever been in a position in which you wanted to disclose something but were worried about how it would be perceived? Were you concerned that you’d be treated differently as a result of the disclosure? Unfortunately, I’ve been in this position recently, as I continue to navigate the…
I was diagnosed with a fatal lung disease called idiopathic pulmonary fibrosis (IPF) three years ago. Since then, my life has been full of ups and downs — most of which my peers, who are other young adults, cannot relate to as a result of living a healthy life.
Chronic illnesses inevitably cause physical changes in a person’s body. These alterations include scars from surgery, procedures, and the placement of a medical device such as a port-a-cath or a peripherally-inserted central catheter, or PICC line. Since being diagnosed with idiopathic pulmonary fibrosis (IPF), I’ve experienced many physical changes…
Following my diagnosis of idiopathic pulmonary fibrosis (IPF), I took some time to research the available information to learn about my disease. Despite discovering a lot of useful material from brochures, online sources, and support networks, I’ve found that connecting with other patients has helped me the most since my…
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