As I sit down to write this column, I am consciously aware of, and thinking specifically about, where I feel pain in my body. Right now, both of my calves are sore. They feel as if the muscles are wound tightly around one another. My right forearm is…
Columns
As a pulmonary fibrosis patient, being on supplemental oxygen 24/7 is quite a challenge. There is a lot to adjust being tied to a cannula all the time, which I’ve written about in a prior column. There are also lots of challenges when dealing with…
Lately, it feels as if I spend most of my time apologizing to friends and family for canceling plans. Before being diagnosed with idiopathic pulmonary fibrosis (IPF), I rarely canceled plans. Usually, I was the one to initiate and finalize plans, going about my social life at…
“How are you doing?” is the infamous quintessential question I am confident all patients with idiopathic pulmonary fibrosis (IPF) are asked on a regular basis. Lately, this question has been a bit of an emotional trigger for me in several ways. I anticipate hearing it when I see…
03 As my PF worsens, the list of things I’m able to do and places I’m able to go grows smaller. I’m sure as a patient and a caregiver, you know exactly what I mean. Grieving as my PF worsens I grieve for all I’m not able to…
For those of you familiar with idiopathic pulmonary fibrosis (IPF), or any interstitial lung disease (ILD), actually, you will likely know what a pulmonary function test is. If you are a patient with any type of ILD, chances are you have had a pulmonary function test, or many,…
Before my diagnosis of idiopathic pulmonary fibrosis (IPF) nearly 18 months ago, I would have never considered myself to be an anxious person. The older I get and the more people I meet, including those who are sick and those who aren’t, I’m realizing how common it…
If you’ve read this column for any length of time, you know that I write about the everyday struggles as a pulmonary fibrosis patient. Congestion is a rather embarrassing topic for me to discuss, but here I go … Nasal congestion I have it a lot. I…
September is Pulmonary Fibrosis Awareness Month, and as I sit down to write this column, I have to admit that the topic is coming from a point of frustration … and even a little anger. As a young adult living with idiopathic pulmonary fibrosis (IPF), I…
This is another column in which I hope others living with idiopathic pulmonary fibrosis (IPF) will have some helpful tips for me. I don’t know if it is my diagnosis or the medications, or maybe a combination of the two. Today, I became really aware of how…
