Throughout this yearlong journey with idiopathic pulmonary fibrosis (IPF), to which I am an unwilling participant, I have often spoken with others about the benefits of having something positive to look forward to. Knowing something good is on the horizon helps in coping with this disease — whether…
I had a frightening incident happen the other day that has left me a lot more protective of my oxygen tank, where I leave it and how often I keep an eye on it when interacting with others. Despite living with rapidly progressing idiopathic pulmonary fibrosis (IPF), I…
Editor’s Note: This guest column, by former New York Yankees centerfielder Bernie Williams, is in honor of his father, Bernabé Williams, Sr., who died of complications from idiopathic pulmonary fibrosis (IPF) in 2001. Williams is a five-time MLB All-Star who played a central role in the Yankees’ winning four World Series Championships. Following his 16-year…
After being diagnosed with pulmonary fibrosis, I resisted seeing myself as disabled. My disease progressed quickly, and within two months I needed to use supplemental oxygen whenever I moved around. I used a portable oxygen concentrator in my work as a marriage and family counselor, even though it…
April 7 has arrived just like any other day (as I expected it would), but it holds so much more significance and meaning for me now. After 13 months of testing and various appointments, it was confirmed that I had idiopathic pulmonary fibrosis (IPF) on April 7, 2016, which…
Last week, I shared my thoughts about different oxygen options to use at home. This week, I’d like to pass on what I’ve learned about different types of portable oxygen possibilities to use away from home. The suggestions I’m sharing are based on my own experience, and I…
In most of my conversations with people who also have idiopathic pulmonary fibrosis, a painful loss they have experienced as a result of their disease is no longer being able to work. Some people have to stop working altogether, while others have to reduce their hours from full-time…
Over the last two-plus years I have become an unwilling expert on the ins and outs of supplemental oxygen. When I started using supplemental oxygen I knew next to nothing and found it very hard to get the help and information I needed. I’ve learned a lot and…
Obligations and what you “should” do as a patient living with idiopathic pulmonary fibrosis (IPF) can be all-consuming. I have learned a lot about myself this week after talking to friends and colleagues. One of the things I must let go of throughout this journey is this idea…
I had an experience last night in the emergency room that has left me thinking a lot. So I decided to turn my thoughts into a column — and I am curious to hear how those of you also living with idiopathic pulmonary fibrosis (IPF) feel about patient…
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