Viewing 7 reply threads
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    • #18854
      Jeannie
      Participant

      I am wondering what breathing treatments are being used for treatments? I am using albuterol, budesinide, and brovana. I am getting a second opinion for my diagnosis next week. I am not sure if I am happy with the doctor I am seeing at this time.

    • #18868
      Steve Dragoo
      Participant

      @jeannie-finley

      Hi Jeannie – because I have IPF breathers have little to no impact on my breathing. We did a forced air test before and after an inhaler and it did not change my gas exchanges, heart rate, (actually increased it a little), or O2 levels. Hope you find what works best for you.  I do use serrapeptase (enzyme) to clear out lung mucus and it is very good at it,

      Best to you – Steve

      • #18874
        Jeannie
        Participant

        Thanks for answering and I am going to check with second doctor to see if I really need to be doing all of these treatments.

    • #18871
      Robert Carlson
      Participant

      Steve Dragoo,

      You made mention of Serrapeptase(4/30).  How is it that you happen to be taking Serrapeptase to help clear mucus?  I also have IPF and have problems with upper respiratory mucus.  I have found that using a saline solution to clear my sinuses and throat (4) or (5) times a day quite helpful.  For how long have you been taking Serrapeptase and what dosage and frequency?

      RGC_Bob

       

    • #18873
      Steve Dragoo
      Participant

      @rgc-bob

      Hi Bob,

      Not sure of your question but I wanted to find ways to slow mucus and help scar tissue. Serrapeptase fit that so I started it and have some interesting improvements. If you consider – do your research because I have no idea what other meds you may be taking but you do not want to take them anywhere close to serra because it sees all food and pills as dead protein and this is what it potentially dissolves. Make sure you get enteric coated so it will dissolve in the small intestine where it can work more efficiently.

      I started at 120000 SU daily about 5 months ago and now take 205000 SU (not IU) 2X daily. It has also significantly removed my many capillary varicose veins – an interesting benefit… – Steve

    • #18907
      Rob
      Participant

      I am taking Esbriet for IPF but had developed frequent and painful sinus congestion recently.  I started taking Serrapeptase(along with saline spray)to help that problem but I do believe my breathing has improved as well.  I’m normally a skeptic about supplements but would like to hear other IPF patients response to Serrapeptase.   Rob

      • #18911

        Hi @obleek (Rob),

        Thanks for writing and asking for some advice re: supplements and Serrapeptase. I’m glad @steve-dragoo replied to you, as he is very knowledgeable about this and has been kind enough to share information about this with the forums. Definitely connect with him for more information if interested 🙂

        Best wishes,
        Charlene.

    • #18910
      Steve Dragoo
      Participant

      @obleek

      Hey Rob,

      I have posted frequently what I have learned about and the effective use of serrapeptase on these forums for the past several months.  There are some videos on Youtube and a couple of doctors I generally follow have some insights to share as well as WebMd.  Success to you in your search…

      Steve

       

       

    • #18920
      David Swain
      Participant

      Hi Rob and Bob,

      I can confirm the advice of Steve Dragoo. have been taking serrapeptase for many years before being diagnosed with IPF a year ago. Since being diagnosed I have increased my dose to 300SUs a day. Although I cough a little, I have very little phlegm and believe this is due to the serrapeptase. I hope this helps. David

    • #18928
      Rob
      Participant

      Thanks David ( @davidaswain ).  I’m currently taking 240,000 but may try to bump up.  Do you always take it on an empty stomach?

      Rob

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