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    • #14694

      While I’ve had many conversations with friends and family about the benefit of medical alert bracelets, it wasn’t until just last week that I obtained one. Actually, for clarity, I didn’t obtain one by choice; my medical team gave me one, told me to register it and wear it on a regular basis.

      I’ve since done this, and what I wasn’t expecting is how much the bracelet has become a conversational piece. I’m not sure whether I like this or not, yet. For example, when people see my bracelet, there has been more than one occasion where they have asked about my medical condition.

      For those of you who do wear a Medical Alert bracelet: have others approached you about your medical condition?

      I understand the importance of this bracelet, and the fact that with one phone call, Emergency Medical Service personnel can have access to my health records and medications. This is to ensure they know how best to proceed with my care in the event of an emergency, so it is important, however, it also highlights to the general population that I have a medical condition. And, I’m not sure how I feel about the latter.

      I’m curious: How many other members of our forums wear a Medical Alert bracelet since their IPF/PF diagnosis? 

    • #14726

      I have almost ordered one about a hundred times but haven’t yet for the fear of what you have experienced. Being on oxygen is stigma enough, I don’t want to add to that. I know I should being insulin dependent diabetic, this, and on oxygen but I can’t seem to get past my fear.

      • #14756

        Hi Michelle,

        Thanks so much for getting in touch and sharing your thoughts on this topic. I am always curious to hear from others about things that make their disease visible, ie. oxygen or the medical alert bracelet!

        I had the same mentality as you, for sure, and fought getting one of these bracelets for along time. I didn’t want to add additional stigma through this piece, in addition to my oxygen. That said, I live alone and if I can’t communicate not only my condition, but also the medications that I am on, EMS could accidentally give me something that could kill me. By wearing this bracelet it gives them the information they need to treat me as effectively as possible, so I tried to weigh out the benefits vs. cons. To keep my bracelet a bit more concealed in the day-to-day I wear it behind my Fitbit band on my wrist. So, it isn’t as noticable or it looks like a piece of jewellery. They also have some really nice, discreet medical pieces… a friend of mine wears his around his neck, and I didn’t even know it was a medical alert. Just something to keep in mind, but absolutely each person is entitled to wearing one or not.

        Not sure if this was helpful at all? If I can be of any more help do let me know.
        Warm regards,
        Charlene.

    • #14728
      Terry Moriarty
      Participant

      I wear one, but I changed the bracelet to one of my own. I got the idea from Lauren’s Hope website. BPeople only notice the bracelet, not the medical alert. couldn’t figure out how to insert a pucture.

       

      • #14757

        Hi Terry,

        Thanks so much for getting in touch and sharing that resource with us. I’ve never heard of Lauren’s Hope website, but I’ll definitely check it out. This is a great idea to keep the medical alert discreet and wear some of your own pieces! 🙂
        Thanks for sharing and I do hope you’re doing alright. As always, it was great to hear from you!

        Charlene.

        • #14763
          Chuck Harrison
          Participant

          Hi Charlene , Chuck Harrison here how do I find this site on facebook

        • #14765

          Hi Chuck,

          Thanks for writing, it’s nice to hear from you. How are things going with you?

          You can find our Facebook page by typing in Pulmonary Fibrosis News in the search tab on Facebook. Not sure if this link will help, but give it a try 🙂

          Hope this works.
          Charlene.

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