Tracking IPF Progression
Kevin’s FVC measurements and percentage decrease over four years. (Courtesy of Kevin Olson)
On multiple occasions throughout the last 5 years of living with idiopathic pulmonary fibrosis (IPF), I’ve wished for easy and practical ways to track my disease progression. I have explored different apps that help patients track symptoms, easily quantify certain measurements such as pulmonary function tests or manage medications but none ultimately helped me develop a “big picture understanding” of what was going on with my IPF.
As you can imagine, when my co-columnist Kevin Olson shared his experience of tracking his IPF progression in a recent column called, Why I’ve Used Multiple Models to Track My IPF Progression; I was pretty excited to hear from another patient who figured out a way to do this!
Check out Ken’s column which includes a number of different visuals to help readers further understand how he tracked his IPF progression prior to receiving his transplant. I’d also love to hear your thoughts: do you strive to track your IPF progression? If so, what methods or devices work for you and allow you to track the progression of this disease?
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