[john styles]

 

the above post tells where to find the posted results, first go to forums.

[john styles]

<span style=”color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;”>Article that got scrambeled from above post on laser and virus from 6 years ago from NIH  Pulmed@4171215</span>

[john styles]

Scarred, but isolating, the only hope I have is isolation works and doing the laser treatments, the article from NIH from 6 years ago was done in a laboratory but since I already do laser to stay stable I am hoping it works, I do laser twice a week to hopefully get thru this pandemic. <span style=”color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-size: 14px;”>Pubmed @ PMC4171215</span>

[john styles]

@thom

Most of the posting are under Pulmonary Fibrosis and awareness and under laser results. I have been doing laser for 15 months now and I am stable, prior to laser I had a steady decline.  Andy Hall posted a interesting

article from 6 years ago and it reported on the success with laser and viruses and done by the NIH. I have gone to twice a week to try to make thru the corno virus outbreak the publication   “Pubmed @ PMC4171215”

[john styles]

 

for all the sideline folks and non believers of laser look what Andy Hall posted on the faebook web site for laser for lungs    Pubmed @ PMC4171215   unbelievable, I googled this and I am shocked that is it is in NIH maybe 6 years ago but great news, since reading Andy’s post I have gone to twice a week with the laser treatments. God bless Andy.

[john styles]

@ildlarry

 

The treatments run $42.50 average, although when in North Carolina I get them for $25,  just do the research on laser for lungs and google a chiropractor with class 4 laser and tell them you have a terminal disease and give them the information and ask them to treat you, I have not not been turned down by a chiropractor. Better yet message  Dr Andy Hall ( @drandyhall ) from above and ask him to help you, he is a chiropractor and a real nice and caring person.

[john styles]

May be time to pack your bags and head south.  Usually these virus like cold weather and not hot and humid weather.  No one is saying anything yet because this is a new virus and no history but India is hot and humid and a population of 1.4 billion people and only 70 cases.  Here is hoping for warm weather and good news. As for me I am not going north, looks like a mess in Seattle and now New York.

[john styles]

My laser results as of March 2020,  I compared my PFT results from September 2016 when diagnosed with usual interstitial pneumonia, a form of IPF.  I have been doing laser since January 2019 and have done over 100 treatments, started out at 10 watts 3 times a week and then twice a week and then once a week and then twice a week and now doing 15 watts for 20 minutes twice a week and then the next week once a week and going to twice a week.  My DlCO was 16.09 in September 2016 and then went down to 10.04 in March of 2019, a decline of 35% in 30 months. Since March of 2019 to March of 2020 I have a 8% increase in Dlco for 14 months. March of 2019 it was 10.04 and March 2020 11.3%.   FEV 1 in 9/2016 was 1.92%  and March 2019 was1.52%, a decline of 22%. March of 2019  1.52% and March of 2020 1.49% a decline of 2% in 14 months. I am real happy with these results and actually my pulmonologist says I have stabilized ( he does not believe in laser, go figure). I do not take the drugs available due to liver scaring and a transplant would require a double transplant.  A big thank you to Andy Hall who inspired me to start laser.

 

 

[john styles]

I have had 99 treatments to date, started laser January 17, 2018 and was diagnosed october 2016.  When I think back to January 2018 and compare myself to what I was doing and what I am doing now,  I  still have the improvement that happened after I started laser. My pft tests initially improved and I was waiting to post until I did another test. After the initial improvement I was stable and hope I still am stable with the pft tests. I do laser twice a week then the next week once a week then back to twice a week. I am doing 15 watts for 20 minutes.  I was steadily deteriorating before starting laser. My form of this disease is usual interstitial pneumonia, I think this form is more aggressive. I do not take the medication available because I have some liver scaring and I would only qualify for a transplant if I did a lung and liver transplant.

[john styles]

I find menthol cough drops work. The prescription cough syrup helps and the benzonatate prescription pills help. the real shocker for me was finding modifying the diet helped most. I would have coughing fits sitting up and laying down and standing. I never had gerd or thought I did not have gerd but when I stopped eating at night, eliminated food that was fried or higher fat and eleimated spicy food my cough went away. Now if I have a glass of wine I take a pepcid and this is in addition to nexium twice a day. Basically follow the gerd diet.

[john styles]

HI Mark

I was really blind sided with the gerd. I had some liver scaring and was getting endoscopy to look for varisies and never was any damage to esophagus noted. I never had the burning sensation, only cough. The cough would happen if I put my recliner back a little or sitting up or laying down. I elevated the bed and took nexium and prescription cough medicine but still coughed my self to sleep and was convinced I had developed the IPF cough. I changed my eating to lower fat replaced ice cream with yogurt fried chicken with grilled chicken and reduced meal size and reduced my wine intake to once or twice a week, I now take a pepcid before drinking wine and before bed if I have a glass of wine. I find a basil leaf to munch on helps. I have eliminated the cough when I lay down. still cough a little during the day. I think its a combination of influences and the body acting out that causes this disease. I think if we take everything we have been told, may be feathers, gerd, mold, heredity and re think the situation we may have the answer.

[john styles]

Gerd, feathers, mold, heredity. I think it can be a combination or to much exposure. I think when the lungs get to much exposure they get scared.  Gas from feathers or feather comforters and pillows or gerd can be contributing factor, living with mold can be an issue. I think when we get to much exposure we get IPF.  I eliminated the feather pillows and comforters and installed the ultra violet light in the air handlers ( the ultra violet lights eliminate viruses and allergiens .) I thought I had developed the dreaded IPF cough and would cough my self to sleep.  Never realized I had gerd but now take nexium in morning and evening and if having a glass of wine or heavy meal I take a pepcid. I also sleep elevated.

[john styles]

Thanks Mark, good to know you are trying to stay on top of these questionable people.

[john styles]

This article from Spain is older but relevant to feather pillows and comferters https://www.catalannews.com/society-science/item/feather-pillows-can-cause-a-chronic-and-eventually-fatal-breath-shortness-disease-according-to-a-catalan-study

[john styles]

I think between feather pillow and comforters and silent gerd that a lot of the problem is answered. I posted a link to a study on feather pillows and comforters in my previous post done in Spain a few years ago. A real eye opener.

[john styles]

I am going on 2 years without being sick. I use the ultra violet light in my air handler which kills viruses,  use premium air filters. I take Allicin the ingredient in garlic that has anti bacterial benefits and I take Dapsone, prescribed by my pulmonologist  and has immune system benefits, it was originally prescribed for leopsary. I have hand sanitizer in bigger jars in my car and keep small bottle in my pocket, if I touch a door, menu, etc I wipe my hands. If I am in the grocery store and some one coughs or sneezes I go the other way. All this after getting a cold when first diagnosed. I may try the elderberry, sounds good.

[john styles]

I had the same problem with my fingers, it was auto immune. My fingers would go raw and bleed and evan when I touched soap they would bleed. It was lachen planus, mine cleared up when I stopped taking  milk  thistle and probiotics. I guess we have to remember auto immune is our body saying it does not like something. I also had a good response with 50 mg of prednisone but after 3 months the improvement stopped and the decline in lung function started again. I am still on prednisone 10mg a day, because of the prednisone I take allicin the compound in garlic that helps prevent infections and dapsone 100 mg. Dapsone is for leopsary but has anti inflammatory and helps prevent lung  infections. I use hand sanitizer all the time, I keep a bottle in the car and when I fly I wipe everything down. If I touch a door I wipe my hands. I have not been sick in 2 years. It is a change in life style.

[john styles]

I had my lung function test yesterday, 10 months of doing laser and 12 month update. I am stable, my pft test done november last year showed Fev1 1.41 and Dlco 10.6 and November this year Fev1 1.56 and Dlco 11.2. I am doing twice a week and now doing 12 watts. I can not do the drugs available due to existings scaring in my liver and a transplant would require liver and lung.  I do not think laser is a cure but thank God for stable results. I am very dedicated to staying on schedule, the only time I missed laser treatments was when I was in Europe. I think the power of the laser and the laser head is very important and  if the laser is working properly.  Sometimes I get discouraged when I pick something up or walking extended distances and needing oxygen. I will take the stabilization and be thankful. Big thanks to Andy.

 

[john styles]

Update on my laser experience. Had my lung function test yesterday and I am stable, with some improvement when compared to lung function test done Nov 2018. My FEV1 had improved 10% and Dlco improved 5%. I was first diagnosed Sept 2016. I had been in steady decline since diagnosis with 15% decline in fev1 from March 2018 to Nov 2018. I do laser twice a week for 12 to 15 minutes, I was doing 9 watts and now doing 12 watts. So much to consider when doing this because with lack of a lot of history on laser for lungs. I have been doing laser for 10 months. I do not think laser will cure this disease or improve our lungs but I feel it has stopped the progression. Sometimes I get discouraged when I have difficulty picking up a heavy object or need supplemental oxygen when walking distances but then I thank God I am stable. A lot to consider when doing laser, the size of the laser head matters, the power of the laser and times per week can impact the results as well as if the laser is working properly.

[john styles]

HI Scott, you may want to try going to sea level, I live in Florida and and when I go to our home in North Carolina at 3000 feet I have to use oxygen almost all the time. When I sleep in Florida at about 100 feet elevation my stats stay at 90 but at 3000 feet they go down to 86 so I sleep with oxygen at night in the mountains. When I sit in a chair in Florida I am at 90 to 92 but at 3000 feet I am 90 eventually decreasing to 86.  Then we can say to ourselves whats the point, this is a disease where we slowly deteriorate.  I am still trying although I admit sometimes I get discouraged. Do not give up.  I have been trying and doing laser for 9 months and that is a whole story unto itself.

[john styles]

Hello, I printed Andys information from his web site and printed the Egyptian study on lower level laser on acupuncture points ( Low-level laser therapy in chronic obstructive lung disease Sayed MA, El-Sherif RM, Mohamed AR, El-Sherif AA – Egypt J Bronchol  ) and gave it to the first chiropractor I use. I have found that when you explain the situation we are dealing with, a disease that is terminal and that the laser has helped people that the chiropractors are very caring and helpful, I use a chiropractor here in Western North Carolina when I am in the mountains. Can not say the same for the pulmonologists who dismiss the laser. Once you start I feel the consistency of weekly treatments is important.  I am doing 20 minutes twice a week at 9 watts and have done laser for 8 months. The only time I have not adhered to a weekly schedule is when I was in Europe for two weeks,  I have remained stable when my pft test done in September 2019 was compared to my pft test done in November 2018. This  is huge to me because I deteriorated 26% since diagnosis in November 2016 and 13% from March 2018 to November 2018.  I use a pulse meter to monitor my sat levels and in the mountains have to use portable oxygen because I live at sea level most of the year in Florida.  I would suggest monitoring your sat levels.  Hope the laser keeps working.

 

[john styles]

Hi May Maya, I have found the breathmax  https://www.chinahao.com/product/563790164060/

Do not know if this is the same as what emphy corp claims is their new drug for copd, pulmonary fibrosis but it seems to be what they are selling in China. This drug talks about sinusitis. Emphy corp is keeping their info real confidential, they finished trial 1 and 2 but did not publish the results and said they have finished trial 3 and asked for approval.

[john styles]

Hi Charlene, I take lots of wipes and squeeze bottle hand sanitizer and wipe everything down and do my hands often. I also take Alicin the ingredient in garlic that has reputation of being anti bacterial. If some one is sneezing or coughing I avoid them.  I take a g3 innogen with me with spare columns and extra batteries and a extra detached battery charger. I also notify the airlines I am bringing my oxygen unit and batteries, the airlines want you to bring 1 1/2 batteries for your flight and lay over. I have been to Europe twice and Hawaii and I am currently in the mountains of North Carolina since I was diagnosed

with this disease. I have to use oxygen uphere because I am at 3000ft coming from sea level.  Happy travels and lots of fun for you.

[john styles]

I put the uv light in my air handlers. Duke  said they were able to eliminate their drug resistance bacteria by using the ultra violet light in their air handlers. It is suppose to cost between $175 and $400.  Mine cost $200 and $375. The manufacturer says the bulbs only last a year but mine have lasted 2 1/2 years.