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March 9, 2023 at 2:36 pm #34566
I had my cataracts removed with no problems. I have now issues with my retina with appointment tomorrow. I have ankylosis spondylitis which can cause problem with retina. I am now noticing a weird change in eye site. Get a second opinion!
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January 24, 2023 at 4:29 pm #34232
No
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April 20, 2023 at 1:15 pm #34917
I was diagnosed via Ct scan done in 2018 because an X-ray looking for pneumonia found fibrosis of both lungs. I was in shock and then referred to pulmonologist who said I had to stop smoking and needed a lung biopsy on the operating table and I said “ no thanks. I have no symptoms of sob or cough. Then I went to UW interstitial lung clinic to the head guy and he told me I had to have lung biopsy thru my trachea and be tested for acid reflux. I did both and do have acid reflux. He asked me if I wanted to get on lung transplant list and I said “No!” He told me I had at most 5 years to live so I told my sons hurried to get my estate and will done and then after another appointment with this doctor, I decided he was rude, gave no hope so I changed to another pulmonologist who said he couldn’t possibly tell me how long I would live!!! So with him I had more breathing tests and they were better than the first ones. I had decided I was not going to let these doctors ruin my life. I stopped smoking, but in a swim spa to work out in due to pain from another disease, and still a year later today, just finished another round of breathing tests. They are even better today! Almost normal. I see him in a few minutes but what I have learned is that 1. Read Mind over Medicine. Exercise. I have been using sucked supplements like Hatkari I think, vitamin E, and a drug on Amazon that starts with a T like Tevigo or something. I listen to regenerative music every night in bed on UTube and think positive!! No cough or sob yet. I have read many stories of living for years and years with this and others that for some horrible reason die very quickly. I just heard a story from my testers today that one of their clients was given Olef ? And now has total reversal of the disease. So find a good doctor and think positive!! For a year all I did was think about my breathing but no more. When and if I get a cough or sob I will go back but not after today! Best of luck! Nina
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March 9, 2023 at 2:33 pm #34565
I am on no meds for PF but on plenty for my ankylosis spondylitis! I am not on oxygen and am not short of breath but I will tell you I have gained 40 lbs since being diagnosed with this. I sm in constant pain in my back and now neck as my bones fuse. I finally have talked my Psych nurse pracctioner and she has started me on Metforin. I will keep you informed of the results. I hate being obese and at 55 was surfing so lie ain’t quite the same. I live by myself and I feel I look so awful that it is hard to want to go out…. No one has ever mentioned my problem with weight until my doctor at he UW wrote that I was obese. So I changd pulmonary docvctors! You have to advocate for yourself these days.
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January 24, 2023 at 3:08 pm #34229
I may have said this before but I was diagnosed in 2018. It is now 2023 and still no cough or SOB. I researched myself and take zinc and a chinese herb Teavigo on Amazon, red light therapy but don’t have the IV. I refinanced my house to put in a swim spa because I have another disease that currently is worse, called ankylosis spondylitis where my bones are growing together. I am in pain 24/7 so thats why i do aerobics and swim in my back yard. I missed my last half yearly tests but after this next one I don’t see the need to go unless i start to lose weight, am sob or cough! I wouldn’t know I even have this if it weren’t for the bronchitis. How many people are walking the planet with this and don’t know it.?? Get the book called mind over Medicine. I also due meditation every night with U tube and healing at a cellular level. Nina PS. Change doctors if they tell you 3-5 years!!! I am at 4 .
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