Kathryn Maguire
Forum Replies Created
-
Yes I have been on Esbriet 3 years now and I definitely have itchy skin. I use antiitch cream like Gold Bond it really helps.
It is on the expensive side so I do alternate with the store brand antiitch cream and that works too.
I use sunscreen and that seems to help I do not get rashes.
My feet, hands, thighs and calves are especially itchy, I deal with it as it presents itself.
-
I only acknowledge my anniversary so I can beat the odds.
Kathryn
-
I have an Inogen, my son got it for me. I love it, even though it is POC mine goes up to 6. I do not fly with it I don’t fly anymore at all. I do however go to the movies and theatre and restaurants and baby showers etc. It’s hard for me to use stairs so although for the most part on 4 when there is any stairs I pump up to 6. I always have my second battery charged and ready just in case. Good luck with whatever you decide.
Kathryn
-
Hi, I also cannot tolerate any cleansers. I have resorted to Vinegar and Water ; actually it works great also dawn dish liquid. Honestly though my husband does all heavy cleaning and I am in another room so it doesn’t bother me.
-
Hi, I have itchy skin especially at night and on my legs. I find that if I cream my legs with Gold Bond anti itch cream before bed the itchiness goes away. I’ve been on Esbriet for 2.5 years.
Kathryn
-
I am sorry I do not know what UIP is. Can you tell me?
-
I am a quilter and since going for a walk is very difficult for me I have my quilt room all set up and I work on a quilt or 2-3 every day, for the most part. Like others it takes my mind off of my disease and lets me be creative. It also allows me the opportunity to make/give quilts to my family members and friends. I also use Pinterest and You Tube for new fabric and pattern ideas somedays I’m so busy the day flies by and I feel accomplished; a feeling I love.
-
Yes I am aware.😃