Forum Replies Created

  • Kathryn Maguire

    Member
    April 23, 2024 at 3:40 pm in reply to: Acknowledging diagnosis anniversaries

    I only acknowledge my anniversary so I can beat the odds.

    Kathryn

  • Kathryn Maguire

    Member
    April 23, 2024 at 3:38 pm in reply to: breathing device

    I have an Inogen, my son got it for me. I love it, even though it is POC mine goes up to 6. I do not fly with it I don’t fly anymore at all. I do however go to the movies and theatre and restaurants and baby showers etc. It’s hard for me to use stairs so although for the most part on 4 when there is any stairs I pump up to 6. I always have my second battery charged and ready just in case. Good luck with whatever you decide.

    Kathryn

  • Kathryn Maguire

    Member
    April 23, 2024 at 3:34 pm in reply to: Cleaning Products for people with IPF

    Hi, I also cannot tolerate any cleansers. I have resorted to Vinegar and Water ; actually it works great also dawn dish liquid. Honestly though my husband does all heavy cleaning and I am in another room so it doesn’t bother me.

  • Kathryn Maguire

    Member
    March 20, 2024 at 3:14 pm in reply to: Itchy Skin with Esbriet

    Hi, I have itchy skin especially at night and on my legs. I find that if I cream my legs with Gold Bond anti itch cream before bed the itchiness goes away. I’ve been on Esbriet for 2.5 years.

    Kathryn

  • Kathryn Maguire

    Member
    October 31, 2023 at 3:37 pm in reply to: Symptons of UIP

    I am sorry I do not know what UIP is. Can you tell me?

  • Kathryn Maguire

    Member
    September 21, 2023 at 11:09 am in reply to: Introducing Our Newest Forum: Hobbies & Projects.

    I am a quilter and since going for a walk is very difficult for me I have my quilt room all set up and I work on a quilt or 2-3 every day, for the most part. Like others it takes my mind off of my disease and lets me be creative. It also allows me the opportunity to make/give quilts to my family members and friends. I also use Pinterest and You Tube for new fabric and pattern ideas somedays I’m so busy the day flies by and I feel accomplished; a feeling I love.

  • Kathryn Maguire

    Member
    April 25, 2024 at 3:41 pm in reply to: breathing device

    Yes I am aware.😃