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    • #23614
      Wendy Dirks
      Participant

      Hi, Susan – I have tanks delivered to me that fit into a backpack or a little trolley. I’m barely using oxygen at the moment, however, as my husband and I have been self isolating for over a week and I don’t need it a lot at home. We are now in total lockdown in England. I am spending my days organising food and medicine deliveries. Good luck!

    • #23565
      Wendy Dirks
      Participant

      Thanks, Mark! I am less worried now as we enter day 5 of self isolation and neither my husband and I have any symptoms. Now it’s all about hunkering down and dealing with life at home only for a minimum of 3 months, according to our PM, who frankly, is not the most reliable source in my opinion. I’ve been super busy organising grocery deliveries, pharmacy deliveries, and now flea treatment for my cat. We have to order groceries 3 weeks in advance online because all other slots are taken. Fortunately, I’ve checked online every day and stayed ahead of the game so we should be fine. And my husband has taken up baking bread! Somehow we will get through this.

    • #23465
      Wendy Dirks
      Participant

      These are extraordinary times we are living in. I don’t think any of us could have predicted this back at the beginning of January. I hope that you remain safe and indeed, everyone in our community remains safe. My husband is 74 and both he and I have begun self isolation in advance of an expected directive from the government for us to do so in the next couple of days. I have ordered grocery deliveries but so many other people are doing this that I have to order over a week in advance to get a delivery slot.

      I am using ambulatory oxygen and I’m wondering if I become ill whether I can make the switch to 24/7 oxygen by monitoring my oxygen saturation when at rest. I have heard that the phone lines to the NHS have queues of over 100 people waiting for advice. So far I am not ill and hope to remain that way. As I mentioned earlier, I brought up the coronavirus to my consultant at our last meeting and she didn’t have much to say. I certainly hope that at this point, our health care teams have answers for us.

      If anyone has had specific advice for those of us with PF, please do share it here.

    • #23373
      Wendy Dirks
      Participant

      Hi, Mike – I do hope that you are a candidate for a transplant. That would be a very positive step.  It sounds as if you made a sensible choice about coming home early. Best wishes, Wendy

       

    • #23369
      Wendy Dirks
      Participant

      And as to not touching my face – ack, forget about it! My nasal cannula always needs adjusting and because of my extreme allergies to the entire world (I have hypersensitivity pneumonitis), my eyes are always weepy and crusty – I have some sort of chronic allergic conjunctivitis and although I use prescription eyedrops, they don’t always prevent extreme itching and burning in my eyes. I just need to hide until there is a vaccine.

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