My Path to Closure Requires Retrospection

As I move through the seasons of this year, I can’t help but feel the imprint of the events and emotions of last year. I keep comparing moments from now to this time one year ago. There are many unofficial anniversaries that my internal clocks have kept. As we…

When I was diagnosed with idiopathic pulmonary fibrosis (IPF) three years ago, I had never heard of the disease. I was told that it was rare. Even rarer, my doctors said, was my diagnosis at 28. They had considered IPF when first looking for answers for my breathlessness,…

People with pulmonary fibrosis living in the Mercer and Bucks County regions of New Jersey and Pennsylvania now have access to a new pulmonary rehabilitation program. The program, launched by Capital Health in December, will be located at the Wellness Center at Capital Health Medical Center –…

I try to practice gratitude every day. The word “practice” is appropriate. Viewing daily trials through a lens of gratitude did not come to me by instinct or inheritance. I started doing it several years ago to try and force myself out of a funk. Writing down something that I…

The world is a different place than it was a decade ago, especially in the realm of technology and social media. Smart devices track daily tasks, remind users to complete to-do lists, help with budgeting, and navigate driving routes. There are a number of ways technology can help patients…

The Canadian Registry for Pulmonary Fibrosis (CARE-PF) enrolled in its first 18 months more than 1,200 people with interstitial lung disease (ILD), with more than half having either idiopathic pulmonary fibrosis (IPF) or connective tissue disease-associated interstitial lung disease (CTD-ILD). Data collected through the CARE-PF registry could be useful…