‘Should’ vs. ‘Should Not’ as an IPF Patient

Obligations and what you “should” do as a patient living with idiopathic pulmonary fibrosis (IPF) can be all-consuming. I have learned a lot about myself this week after talking to friends and colleagues. One of the things I must let go of throughout this journey is this idea…

When 78-year-old Bill Vicks was diagnosed with pulmonary fibrosis in 2011, doctors gave him three years to live according to an article in capecodtimes.com. The super-fit septuagenarian did what he does best—dons his sneakers and goes out for a run. MORE: How to live for the moment with…

When Maureen McDonald’s father passed away from pulmonary fibrosis, she wanted to do something to celebrate his life and raise awareness of the chronic lung disease. She decided to join the annual American Lung Association Greater Chicago Chapter’s “Fight for Air Climb.” MORE: Animated film explains symptoms of pulmonary fibrosis.

I had an experience last night in the emergency room that has left me thinking a lot. So I decided to turn my thoughts into a column — and I am curious to hear how those of you also living with idiopathic pulmonary fibrosis (IPF) feel about patient…

Although most cases of pulmonary fibrosis are not genetic and often unknown when it is called idiopathic pulmonary fibrosis. However, there are rare cases where the condition runs in families suggesting a genetic link to the disease. MORE: The relationship between pulmonary fibrosis and pulmonary hypertension. Researchers have isolated…

Pulmonary fibrosis is a chronic lung disease where the tissue surrounding the air sacs in the lungs becomes scarred. This scarring, or fibrosis, makes it difficult for the body to get enough oxygen into the bloodstream. The common symptoms of pulmonary fibrosis include shortness of breath, persistent coughing, weight loss and loss…