A while ago I was feeling tired and found myself debating whether I wanted to put out the energy to get together with some friends. Going out and lugging my oxygen around is a lot of effort, and it wears me out. It hit me that this was…
Don’t Let Your Diagnosis Take Away Your Ability to Live NOW
Everyone suffers from stress from time to time but when you have a chronic disease, stress not only adds to your everyday burden but can often exacerbate the symptoms of your condition. While we can’t avoid stress altogether, there are ways that we help ourselves relax more and not let things…
There is tons of literature that endorses the idea of connecting with others for support when you’re faced with a chronic illness, such as idiopathic pulmonary fibrosis (IPF). I know that literature very well because I thoroughly examined it throughout the writing of my masters thesis this…
We only get one set of lungs so it’s imperative that we look after them. This is even more important with diseases that directly affect the lungs as it could help slow down the progression of the disease and ease the symptoms. To help you take the best possible care of your lungs,…
Higher levels and activity of an enzyme, called urokinase plasminogen activator (uPA), were associated with fibrosis in lung tissue of patients with idiopathic pulmonary fibrosis (IPF). This suggests that uPA may be a target in treating lung fibrosis. The study, “The fibrogenic actions of lung fibroblast-derived urokinase: a potential drug target…
https://vimeo.com/105996688 Idiopathic pulmonary fibrosis (IPF) is a rare progressive lung disease with no known cause. Although there are medications and therapies that can treat the symptoms of the disease and help slow down its progression, there is no cure. Find out more about how pulmonary fibrosis is treated. In…
A lung fibrosis treatment based on a shark antibody is on the verge of entering a first clinical trial in patients. The treatment has shown promise in animal models of fibrosis, and offers hope for a therapy that is superior to current treatment approaches for lung fibrosis. Developed by Australian-based AdAlta, the compound is a…
The British Lung Foundation has a series of videos featuring idiopathic pulmonary fibrosis (IPF) patients sharing their stories. The patients come from all walks of life and their journeys are all very different. In this video, Joyce explains that it took four years before she received her idiopathic pulmonary fibrosis diagnosis.
People with idiopathic pulmonary fibrosis, and their caregivers, can learn more about this disease and its care using a free and online interactive program developed by ProPatient, the Pulmonary Fibrosis Foundation (PFF), and the Academy for Continued Healthcare Learning (ACHL). Called “Idiopathic Pulmonary Fibrosis: Partnering with Your Doctor,” the educational program offers…
https://vimeo.com/194483794 It’s estimated that 132,000 Americans are living with idiopathic pulmonary fibrosis, yet very few people are aware of the disease. Idiopathic pulmonary fibrosis (IPF) can be an extremely difficult disease to diagnose, mostly because the main symptoms can be attributed to many other diseases. Here are nine steps to help…
