People with idiopathic pulmonary fibrosis (IPF) who have low levels of oxygen in the blood (hypoxemia) might be closer to having a new treatment option with the launch of a Phase 1 trial evaluating GBT440 in healthy volunteers, and two Phase 2 tests in select IPF patients. Global Blood…
Hemoglobin Modifier GBT440 Being Tested for IPF Patients with Poor Blood Oxygen Levels
Traveling with pulmonary fibrosis (PF) can be very challenging if you require oxygen. You need to be sure you have enough oxygen for your journey, plus extra in case of any hold-ups or unforeseen circumstances. Usually, traveling short distances doesn’t really pose many problems but long distance car travel or traveling by…
I’m not big on hope, even though I have a sign that says “hope” on my porch year-round. Are you thinking “Wait! How can she say that? I want to be encouraged here!” I’m not big on attaching hope to:…
Learning that a loved one has a chronic illness is devastating, and even more so if that illness is likely to cut their life short. Everyone deals with the death of loved ones different, the grieving process is varied and there is no wrong or right way to go about…
I have tried countless times to describe the feeling of breathlessness to the people in my life who love me and want to understand what I am going through. It doesn’t seem to matter, though, how many times I try to describe what being short of breath feels…
It can sometimes be a challenge to look on the bright side when you have a chronic illness, but spending time doing things that make you happy will help keep depression at bay, help you come to terms with your illness better and begin enjoying life again. To help you feel happier,…
Spanish patients with idiopathic pulmonary fibrosis (IPF) saw their hospital and follow-up care improve from 2004 to 2013, according to a new report. The study, “Retrospective observational study of trends in hospital admissions for idiopathic pulmonary fibrosis in Spain (2004–2013) using administrative data,” appeared in the journal BMJ Open. It…
If you have a chronic illness such as pulmonary fibrosis you can draw tremendous strength from others who are going through the same experiences as you are. Befriending others who suffer from the same illness provides you with a community you can rely on, who understand your situation better than your friends and family. It…
A factor crucial to lung development also appears to promote fibrosis, the tissue-scarring in the lungs associated with idiopathic pulmonary fibrosis (IPF), according to a study. The factor, TAZ, locks lung fibroblasts — or cells that generate connective tissue — in a state that promotes fibrosis. TAZ stands for transcriptional co-activator with…
When living with an invisible and chronic illness, such as idiopathic pulmonary fibrosis (IPF), I suppose it’s inevitable that you will have some really hard days (no matter how much you try to find the good in each day). To put it bluntly, some days just suck.
