I still remember the day my doctor diagnosed me with pulmonary fibrosis I was hit with a ton of emotions, all at once. I couldn’t believe what he was saying. I was confused, incredibly sad, angry and disoriented. I felt one emotion, then another and then a third…
Making Friends with Your Emotions
Talking to Patients Who Have Been Diagnosed With IPF
In this short video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2014, Dr. Toby Maher from the National Heart and Lung Institute at the Imperial College in the U.K. talks about how doctors discuss idiopathic pulmonary fibrosis (IPF) with their newly diagnosed patients. Discover seven reasons why…
9 Ways to Better Manage Your Pulmonary Fibrosis
Living with pulmonary fibrosis (PF) is difficult, both physically and emotionally. However, there are ways that you can manage your condition which will help you to improve your quality of life and reduce the stress associated with having a chronic illness. We’ve compiled a list of nine ways you can better…
Why Pulmonary Fibrosis is Often Misdiagnosed
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2014, Professor Vincent Cottin from the National Reference Center for Rare Pulmonary Diseases in Lyon, France talks about how difficult it is to diagnose idiopathic pulmonary fibrosis and how often it’s misdiagnosed. Find out more…
Typically speaking, I pride myself on consciously choosing not to express hatred toward anyone or anything. It is my personal belief that the word hate is overused in our society, and that it can have terribly negative effects on people overall, impacting the general mood, creating a toxic work place,…
The University of Alabama at Birmingham’s cystic fibrosis (CF) research center has chosen a Dutch company’s advanced X-ray CAT-scan system to help it conduct animal research in CF, pulmonary fibrosis (PF), chronic obstructive pulmonary disease (COPD), and sinonasal conditions. Utrecht-based MILabs’  U-CTUHR microCT system will provide researchers at the University…
In this short video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2014, Professor Vincent Cottin from the Université Claude Bernard Lyon, France, talks about diseases which can often be confused with idiopathic pulmonary fibrosis. Find out about the importance of early diagnosis of pulmonary fibrosis. …
Treating idiopathic pulmonary fibrosis (IPF) patients with the anti-IPF drug Esbriet (pirfenidone) before and after lung surgery could be protective against acute exacerbation, or worsening of IPF, a life-threatening complication associated with lung-cancer surgery.
In this short video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis shared in September 2015, Dr. Toby Maher from the Royal Brompton Hospital in London, UK, talks about ways pulmonary fibrosis patients can adapt their lifestyle to improve their quality of life. Find out what some pulmonary fibrosis patients…
Global Blood Therapeutics has enrolled its first patient in the ZEPHYR Phase 2a clinical study assessing the safety and effectiveness of GBT440 in treating hypoxemia (low levels of oxygen in the blood) in patients with idiopathic pulmonary fibrosis (IPF) who are on supplemental oxygen at rest. GBT440 is an…
Your PF Community
Recent Posts
- Oral therapy GRI-0621 boosts lung function, repairs tissue in IPF: Data December 17, 2025
- The greatest gift I’ve received wasn’t under the Christmas tree December 16, 2025
- Reversing caregiver roles taught me about emotional presence December 16, 2025
- Our response to a PF diagnosis was achieving a ‘life beyond limits’ December 11, 2025
- New IPF treatment moves ahead after encouraging study results December 10, 2025
