So what is grief? Isn’t it just lots of crying? That is such a normal question. Grief is the process of letting go of someone or something that was deeply important to you. Grief is very different for each person, and comes in waves…
The Healing Cycles of Grief
Pulmonary Fibrosis Stories: Ricky Miller
https://vimeo.com/162782590 In this photograph montage from Jason T. Beck called Celebrating Ricky Miller, we get a glimpse of the life of Ricky from Akron, Ohio, who battled idiopathic pulmonary fibrosis, a chronic condition that causes scarring in the lung tissue. Find out why we shouldn’t stop raising…
Raising Awareness of Pulmonary Fibrosis
Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can only ease the symptoms. Around 40,000 people die each year from pulmonary fibrosis in the U.S. yet very few people…
A University of Vermont medical professor has won a $6.3 million award to study antioxidant therapy as a possible treatment option for those with lung diseases such as pulmonary fibrosis (PF) and asthma. The National Heart, Lung, and Blood Institute (NHLBI) gave its first Outstanding…
A single microRNA was found to play a key role in lung fibrosis by regulating several signaling pathways involved in the release of pro-fibrotic signals. The study, “miR-323a-3p regulates lung fibrosis by targeting multiple profibrotic pathways,” was published in the journal JCI Insight. MicroRNAs are small…
There is so much to adjust to when you’ve been diagnosed with pulmonary fibrosis. For me the biggest adjustment has been the diagnosis itself, with it’s dismal future. Then there’s medical tests, oxygen, tiredness, change in functioning at home and work, grief, and a…
The Viscira production company has won an international award for a 3D animated video about idiopathic pulmonary fibrosis (IPF) that it did in collaboration with Roche. The Academy of Interactive and Visual Arts gave its Silver Davey Award to Viscira for the best video in its category. The Davey…
Fat-free mass index (FFMI), a measure similar to body mass index (BMI) but that also takes into account the amount of muscle mass in the body is a significant predictor of survival in idiopathic pulmonary fibrosis (IPF) patients.
This film from Focus Patient describes the rare chronic lung disease idiopathic pulmonary fibrosis (IPF) for patients who have been recently diagnosed. Dr. Toby Maher talks about how doctors discuss idiopathic pulmonary fibrosis with their newly diagnosed patients. The educational film goes into detail about how the lungs work…
8 Tips to Help You Stay Active Through the Holidays
Exercise is crucial for people with pulmonary fibrosis to help slow down the decline of lung function and to maintain overall health, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find time to…
Your PF Community
Recommended Posts
- Lab study IDs OG treatment for further testing, potential use in IPF
- How I shared my IPF diagnosis with friends, family, and co-workers
- Tyvaso found to preserve lung function in those with IPF in large global trial
- From diagnosis to treatment: What life with PF is like, part 1
- How my husband and I changed caregiver roles after his treatment
