A Powerful Trio for Managing Pulmonary Fibrosis

Managing a chronic illness is not for the faint of heart. Learning to live with idiopathic pulmonary fibrosis (IPF) is the hardest thing I’ve ever done. I applaud my colleagues at BioNews Services and the friends I’ve made around the world who share their stores and advocate for others.

A Body and Its New Lungs: A Love Story

It’s been seven months since my mom, Holly, had a double-lung transplant. She and the miracle organs that have been stitched within her are going strong. But their relationship hasn’t been perfect. My mom’s body and her new lungs each brought their own baggage to the relationship.

Q&A with a Pulmonologist: What IPF Patients Want to Know

After my single-lung transplant in December 2015, I was invited to participate in a panel of idiopathic pulmonary fibrosis (IPF) and lung transplant patients who had previously taken the anti-fibrotic medications Ofev (nintedanib) or Esbriet (pirfenidone). My pulmonologist had asked me to take part in a…

How I’m Managing Increased Breathlessness

For the third day in a row, I’ve been feeling angry with my body, particularly my lungs. I’ve been experiencing severe breathlessness. While I don’t have signs of a viral or bacterial infection, I’m struggling to hold a conversation because of my need to pause frequently. This level of…