Since being diagnosed with idiopathic pulmonary fibrosis (IPF) nearly four years ago, I’ve learned a lot about chronic illness communities. Additionally, I’ve learned about the many professional roles that affect patients, families, and caregivers living with chronic illnesses. All of these roles are important in helping those of us…
Columns
The novel coronavirus that causes COVID-19 is slowly working its way around the world. Along with the spread of this new strain of coronavirus, fear and misinformation have been making the rounds. Since the COVID-19 virus has made its way to the States, the uncertainty and unknowns about the…
Recently, a topic in the Pulmonary Fibrosis News Forums called “fits of cough” caught my attention. Reflecting on the topic brought back vivid memories of my own experience with coughing attacks. Before my single-lung transplant, coughing spells sometimes lingered for up to 45 minutes. It always felt like…
I am a believer in the power of sharing stories. I believe that our narratives can shape and inspire others. As a columnist for Pulmonary Fibrosis News, I hope to help others by sharing my story about living with idiopathic pulmonary fibrosis (IPF) as a young adult. “When you stand…
Feb. 29 is Rare Disease Day. Pulmonary fibrosis is one of the more than 6,000 known rare diseases. While PF may not have much in common with other diseases, those with PF share a connection with the one in 20 people worldwide who will live with a rare disease…
Rare Disease Day takes place on Feb. 29. Bionews Services, the parent company of this website, has taken on this initiative in an all-out effort to bring awareness to rare diseases, of which over 6,000 have been identified. I often ask myself, “What will you do to bring…
I believe we all have an innate desire to feel connected with one another. It doesn’t matter whether that connection is when we’re empathizing with another patient plagued by the same disease, or when the anguish we experience matches that of a patient who is also a friend. One of…
As I write this, I have been living with a rare disease for 1,413 days. On April 7, 2016, my life was transformed from an active young adult to a chronically ill patient when I was diagnosed with idiopathic pulmonary fibrosis (IPF). I remember how naive I was about…
Much of my young adult life was molded by my fears. I have talked about the effects in past columns, and how my mom’s hospitalization helped me find my courage. After surviving months in the ICU, a double-lung transplant, and a rocky start to her recovery, my mom is…
When thinking of chronic lung conditions, you may visualize the use of supplemental oxygen or a person struggling with physically demanding tasks, such as walking up a flight of stairs. People living with idiopathic pulmonary fibrosis (IPF) often struggle with daily tasks. As our disease progresses, our ability to exchange oxygen…
