Being diagnosed with pulmonary fibrosis is an overwhelming experience In a moment, our lives are changed forever when receiving this diagnosis. How do we absorb being diagnosed with a terminal illness? Where do we get answers to our many questions? How do we get support from others who…
Columns
As much as I desperately want to be involved in my friends’ social lives and participate in work events, charity fundraisers, and milestone celebrations such as weddings, stag and does, and baby showers, I find that lately, I have been feeling the stress of obligations. What is…
How do you get liquid oxygen? Last week I shared my struggle to get my oxygen provider to bring me liquid oxygen. It took me five months, but I was finally successful. In case you missed it, last week’s column also included a video demonstrating how I…
Trust me when I say that this column does not come without a lot of behind–the–scenes work to try to change my thinking so I can offer a more positive message. I still can’t say I practice what I preach. But I do want to share an…
When I sit down to write these columns, I often reflect on something that has been difficult throughout my journey with idiopathic pulmonary fibrosis (IPF). I usually focus on something that has changed as a result of my disease — something I have lost, or something that…
About a year ago I put on my “big girl panties” and began the fight to get my oxygen provider to supply me with liquid oxygen. Up to this point, I’d been using an oxygen concentrator at home, and a portable oxygen concentrator away from home. I…
As summer settles on most of Southern Ontario, Canada, it brings with it our first heat wave. Normally, I love the heat. Even last year, after I received my diagnosis of idiopathic pulmonary fibrosis (IPF), I didn’t mind the summer months. This year, with significantly reduced lung function,…
In a recent column, I wrote about how I felt and acted much differently than normal. I mentioned that I was grumpy, irritable, quiet, and mad, and I referenced a few things and reasons that left me feeling this way. What I neglected to mention is another…
Last week, I shared how common it is for patients and loved ones to struggle with the severity of our PF diagnosis. We are all equipped differently to handle emotional pain and face the reality of what we are dealing with. Our faith can be a…
As one of my beloved healthcare providers always tells me, “There is no rule book for living with pulmonary fibrosis.” She says this when we talk about my constant frustration of living with a life-threatening illness, and the unpredictability, anxiety and emotional turmoil that comes with it.
