A while ago I was feeling tired and found myself debating whether I wanted to put out the energy to get together with some friends. Going out and lugging my oxygen around is a lot of effort, and it wears me out. It hit me that this was…
Columns
There is tons of literature that endorses the idea of connecting with others for support when you’re faced with a chronic illness, such as idiopathic pulmonary fibrosis (IPF). I know that literature very well because I thoroughly examined it throughout the writing of my masters thesis this…
I’ll be honest, I’m not sure I have a good answer to this question, but I’ll share my journey delivering this message. My journey actually began by telling others I had breast cancer three-and-a-half years ago. Only 10 days elapsed between that awful phone call and my surgery. I…
When you think of someone who has a lung disease, such as idiopathic pulmonary fibrosis (IPF), it is easy to understand that physical exhaustion is likely a primary side effect. What may not be so easy to understand, however, is the mental exhaustion that comes with having…
I am quite aware of what I can no longer do, and grieve these losses. I also have found that focusing on what I CAN DO encourages me, and gives me hope and purpose. My sister Kyle and yours truly. My…
Many of you who have been following my column know that I was lucky enough to return to Australia this past fall for three weeks. “Lucky”… it is such a funny word, because while some may say I was lucky to get to travel across the world, others…
As a patient with pulmonary fibrosis I try to come up with ways to calm myself calm when I’m distressed, discouraged, scared or in pain. Dealing with this diagnosis gives me plenty of opportunities. The need to soothe ourselves when distressed occurs…
This is difficult for me to write. Since being diagnosed with IPF (Idiopathic Pulmonary Fibrosis), I sometimes struggle to find empathy when others are sick with common ailments such as a cold, sore throat, headache, etc. I really dislike this about myself. In fact, writing about this…
I have a love-hate relationship with the need to be strong on this journey with idiopathic pulmonary fibrosis. It is important to be strong, but I think it is equally important not to show, or attempt to show, strength, especially when you don’t feel very strong. People sometimes…
As we head into this New Year I wanted to take some time to thank all the caregivers who help us live with pulmonary fibrosis. It is easy for me to be aware of all I’m dealing with as a result of this illness, and unintentionally minimize the…
