This column comes from a place of physical and emotional exhaustion, so please bear with me. I know I’ll regain the physical strength in a couple of days, and I know the emotional toll will decrease as well, and I’ll see things a little more clearly soon enough. As Annie…
Columns
When you’re living with a life-threatening illness such as idiopathic pulmonary fibrosis (IPF), it often feels like everything is on overdrive. What I mean is that I often feel oversensitive to the comments people make, or how they might react to seeing me on oxygen, and this…
This is a difficult blog to write I’ve been making decisions about how to spend my limited time and energy wisely. I was hoping to bounce back after I experienced a decrease in lung function about two months ago. But a trip to my doctor caused me…
After a week filled with others doing things to help me, including spending more than six hours on a weeknight helping me move to a new home, I was thrilled to be able to do something for someone else this weekend. The joy I felt from cooking…
Do you ever feel that sharing difficult news about yourself is a burden on your friends? I have been struggling a little with this recently and, as a result, I am feeling very alone. Writing this column is not easy. To explain further, I have an upcoming…
I sat down to open my mail a few days ago and received what felt like a slap in the face. Shame hurts. My local utility company sent me a report letting me know that I was using 161 percent more…
With Rare Disease Day 2017 coming up tomorrow (Tuesday, Feb. 28), I have been thinking a lot about responsibility. As someone living with a rare disease (idiopathic pulmonary fibrosis, or IPF), I am feeling a bit of responsibility around my efforts to raise awareness for this disease, and…
I always have been fairly independent. When I was little I played outside alone in a small town where the “scary stories” of a big city just didn’t happen. I was lucky enough to buy my first car very early in my teenage years, which gave me…
I’m not big on hope, even though I have a sign that says “hope” on my porch year-round. Are you thinking “Wait! How can she say that? I want to be encouraged here!” I’m not big on attaching hope to:…
I have tried countless times to describe the feeling of breathlessness to the people in my life who love me and want to understand what I am going through. It doesn’t seem to matter, though, how many times I try to describe what being short of breath feels…
