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    • #21670

      It’s no secret that a balanced diet is important for everyone, but especially those living with a chronic illness. Since being diagnosed with idiopathic pulmonary fibrosis (IPF) a little over three years ago, I’ve become a lot more aware of what I consume on a daily basis, and what is regularly part of my diet. Unfortunately, some of the medication side effects from the anti-fibrotic drug that I am on called Ofev, curb my appetite and I don’t eat as much of healthy things like I should – such as fruit: the acid tends to bother me more than it did before my diagnosis.

      I was recently on vacation in Hawaii, and found an exception to the acidic fruits rule as I enjoyed tons of fresh pineapple. I was also told that pineapple and pineapple juice are really good for the lungs, and generally, for reducing inflammation. Typically, I feel a lot better when I eat plenty of healthy foods: my energy level is better, mental clarity and sleep are both improved. This got me thinking about foods that I should be incorporating into my diet and may not be right now. I came across the following article I wanted to share with our forums community, called 7 Foods for Eating Well With a Chronic Lung Condition 

      Have you tried any of these foods in particular, or do you incorporate them regularly into your diet? 

      If so, do you notice a difference in how you feel?

      Please let us know.

    • #21716
      Richard Bowden
      Participant

      Ever since I became a father, 13 years ago, I became conscious about activity and about what I consume.  So, I’ve been inadvertently making changes in my diet.  I was diagnosed with IPF a year ago and I did tons of research about what if anything I could change to help or improve my condition.  I’ve heard that enzymes in red-meat cause mucus/inflamation.  So, I now stick to consuming poultry and fish but, strictly for lunch.  In the mornings and dinner, I drink freshly made “juice it yourself” vegetable/fruit juice.  I eat a meat for lunch along with a whole grain, fruit, and either drink water or a fresh juice.  Recently, I watched an Amazon documentary called, “Fat, Sick, and Nearly Dead” and that totally changed my outlook about what I’m putting in my body.  The narrator, who also suffers from an autoimmune disease, challenged himself to only consume juiced vegetables and fruits for 90 days.  He was well over 300lbs when he started his journey.  In two weeks time he lost like 30 lbs.  Throughout the documentary experts chimed in and educated the audience about how unhealthy and detrimental the typical American diet is and spoke about the effects of what happens inside the body after the over consumption of processed foods and red meats.  They also spoke about the benefits of juicing your own fruits/vegetables. Unlike the narrator who went 100% juicing, I juice only about 66% in my diet.  What’s significant about these percentages is that typically in the American diet, 60% is meat based, 5%fruits/Vegetable, 5% grains, and 30% processed foods.

      After I made the change to juice, in two weeks I lost 10 lbs.  I lost the stubborn weight around my midsection.  The third week I didn’t notice any more weight loss and I’m at my normal walk around weight.  With the diet change I sleep better, I am alert, I have less phlegm, and I can not say that my breathing has gotten any better and I cannot say it has gotten any worse until I have my next check up (which is actually tomorrow).  I’ll let you know…

      • #21721
        Mark Koziol
        Keymaster

        Hello Richard, you do an amazing job of nurturing your body. I’m sure it takes a lot of discipline to do what you are doing. I’m glad you are reducing the effect of some your symptoms and I’m sure others will follow your lead. Please update the forum after your doctor appt tomorrow. I hope there is no progression in your fibrosis. Take care, mark.

    • #21717
      Malcolm Mann
      Participant

      Hi all
      I,ve led a low fat high fibre life for years, but now am in a quandry, the OFEV literature recommends bland low fibre diet. While my gastroenterologist (and the rest of the medical profession) insists on high fibre diet. We enjoy an international diet, a bit Mediterranean, a bit Asian & Australian general, 95% home cooked.
      Since starting OFEV I really have’nt changed what I eat other than greatly reduced intake (reduced appetite) and am in a mild state of diarraeah a lot of the time, not continually just episodically.
      What foods have those on OFEV found safer, and what do you now avoid.
      Cheers
      Mal

      • #21722
        Mark Koziol
        Keymaster

        Hello Mal, you are going to have to use the trial and error method for your diet options. I can tell you what I did but we all have had different experiences with the effects of this medication. I ate small meals 5-6 per day with a protein and a carb on my plate. I did find eating a banana with my meds in the morning alleviated some discomfort. Also I knew if I ate fried foods such as chicken wings I would have to pay for it quickly. I hope you find the right combination for yourself. Best wishes, Mark.

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