firstly I am new to the forum although I have been reading all the articles and discussions for many months and find them extremely useful.
I was diagnosed with IPF in July 2017 and started taking Nintedanib in Aug 2018. Thankfully I don’t have many of the side affects normally associated with this drug and it’s slowed down the progression of the fibrosis. However while the fibrosis hasn’t got worse I feel more breathlessness and more fatigued particularly in the last 3 months. The biggest change in the last 6 months has been my DLCO level which has dropped from 57 to 49 and I wondered if anyone in the forum has similar experiences of low DLCO levels. I am currently doing medical rehab to see if I need oxygen as my SpO2 drops to mid 80’s and heart rate increases to 150 on exertion.
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