August 26, 2020 at 4:24 pm #25379Marybeth PalumboParticipant
I am so happy that I found this Forum! Thank you Mark for your warm welcome.
I was diagnosed in late December 2019 with early IPF .
I have very little to offer. All I have are questions. Mostly, I am in denial!
I do have one piece of information to share. I got GREAT relief with Gabapentin for my cough. The Pulmonologist
said that a small percentage of patients get relief with it and I am one of the lucky ones.
August 26, 2020 at 7:38 pm #25383
Hello MB, thank you again for joining and engaging in discussion. I’m happy the gabapentin is working for you. I previously wrote a forum topic on this subject. Being in denial is normal. Please stay as active as possible. You will benefit from exercise. Please keep engaged and ask questions whenever you feel the want or need to. Take care, Mark.
August 26, 2020 at 7:49 pm #25385
Hi, here is the link for the gabapentin. https://pulmonaryfibrosisnews.com/forums/forums/topic/gabapentin-is-a-proven-treatment-for-refractory-chronic-cough/
August 27, 2020 at 2:10 pm #25389Marybeth PalumboParticipant
Thank you so much for the article link.
August 27, 2020 at 3:52 pm #25400Jerry GenesioParticipant
I didn’t know gabapentin suppressed the cough associated with IPF. I was diagnosed with IPF about a year ago and have never had a serious cough, dry or otherwise but I’ve been taking 600 mg of gabapentin t.i.d for at least 7 or 8 years and that could explain why. Thanks, Jerry
- This reply was modified 11 months, 1 week ago by Jerry Genesio.
August 27, 2020 at 3:57 pm #25402
Hello MB, you are most welcome!
August 27, 2020 at 4:00 pm #25403
Hello Jerry, I am happy the gabapentin has also worked for you. The chronic cough associated with IPF is a horrible symptom that appears you have avoided. Take care, Mark.
August 27, 2020 at 6:27 pm #25405Bob RawlinsParticipant
thanks for the info, I too have cough, ugh!
i also have written many blogs about our journey.
we talk about different things and coping
Good luck on your journey. It’s a marathon that can be quite rewarding!
September 14, 2020 at 8:18 am #25555HeatherParticipant
Thanks for this information. I am looking into it for my husband. His cough has gotten so bad that he has rib pain. Thank you all for sharing.
September 14, 2020 at 12:22 pm #25556
Hello Heather, I hope this treatment works for your husband. There is nothing worse than a chronic cough. I believe the coughing has a hand in why some of us become fatigued. Take care, Mark.
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