Forum Replies Created
November 11, 2021 at 6:57 pm #30435
Have been using Ventolin (abuterol) inhaler for over 3 years, morning and night. For about 2 hours after use, I seem to cough up lots more phlegm than if not used. Seems to help clear the lungs and maybe ease the breathing. Main thing is to get that gooey stuff OUT.
September 23, 2021 at 4:55 pm #30024
Thank you Mr. Adams, for posing the question(s) that we all must have. I have found that doctors do not want to deal with questions about what to expect at “the end”. Understandable, as their focus is on treating and curing.
My investigations have led me to decide that the best answers lie in Hospice end of life care. They have the doctors, nurses and home health professionals to keep you comfortable (not drugged out) and peaceful as “nature takes it course”. They also have a complete handle on pronouncing death & causation, and paperwork for a seamless handoff to the Funeral Director of your choice, who “takes it from there”. I just met with a funeral director yesterday and got my services chosen and planned so my loved ones are not suddenly confronted with these decisions in a time of grief. Since I live in two places, a home in Houston, Texas and a ranch 150 miles away. I will now focus on identifying a Hospice organization operating in both location. My situation is a bit complicated, but I know I feel better knowing that all is prepared, planned, and decided whenever the time comes. I know my family feels the same. Now I can focus on enjoying what is left of life and in taking care of myself and family. It is a bridge a bit difficult to cross, but cross it we ultimately must.
Good luck and best wishes. Jim Nox
September 14, 2021 at 4:03 pm #29940
Good to hear from you again. Since my diagnosis of IPF in 2018, I have used Ventolin (two puffs in morning, two before bed, and also as needed). I find it VERY helpful to loosen and expectorate a lot of bronchial junk and clear up airways. Was also perscribed Symbicort and several other “combo” inhalers containing steriods, but have not used them regularly as they did not seem to help more than Ventolyn and are outrageously expensive (a whole ‘nuther subject about the use of carefully crafted/lobbyist empowered tools of USA big pharma to re-patent old drugs in combination so as to get exclusive marketing rights which leads IMHOP to price gouging for minimally efficacious results.)
Hope you are doing well in our common battle against IPF. Unfortunately my IPF has progressed into PAH, a much more serious condition. Nevertheless, I am “whistling through the graveyard” and staying positive.
December 14, 2021 at 9:14 pm #30611
Congratulations on achieving 87 Y/O. I am 84 and was diagnosed with IPF about 7 years ago. Sailed along doing pretty good with slow moderate decline on no meds until last January 21. In the spring I noticed an increasing decline rate. Then in about May I noticed an unmistakable rapid decline. ( all measured by regular 6min walk tests). Was put in the hospital in July for a week of tests including right and left heart caths. Diagnosis was IPF with severe Pulmonary hypertension PAH, a heart desease caused by strain on heart caused by IPF.
In retrospect, I believe my PAH and the sudden decline in 6MWtest were related. With your similar sudden progression and weakness, I would suspect the possibility of the onset of PAH and seek professional help ASAP. I have progresses at a fairly rapid rate and am now on 6L O2 24/7 and am essentially housebound. Just sharing my experience for whatever it may be worth. I wish you the best.
November 2, 2021 at 4:32 pm #30334
Howdy Mr. Kahn,
Another Texan here (Houston and Bryan-College station areas). I am 84y/o with a now very advanced case of IPF, which has morphed into a heart condition known is PH (pulmonary hypertension) the later of which I expect to be the immediate cause of my demise.
Seeing your note about your initial pulmonologist severe diagnosis/prognosis with only one of many tests, scans, and other diagnostic tools showing any abnormality, leaves me a little suspicious that he/she was a bit anxious to get you onto hi-priced drugs OFEV/Esbrit. Unless you have had subsequent diagnostic tests to confirm IPF, I would suggest a second opinion.
The hi-res CTscan should have shown clear structural signs of the development and existence of IPF and all stethescope exams should have revealed sounds of IPF (crackles and velcro tearing sounds). I am not a doc, but have a fairly long history of suffering from and reading about this family of diseases. My history is similar to yours, many years of jogging, physical activity and otherwise good cardio/vascular exercise before my diagnostic exams which revealed all of the above.
I send best wishes that you have a good outcome.