MemberMay 30, 2020 at 10:04 am
That’s so cool @jgenesio , I didn’t know we had a published writer among us! Would you ever consider writing about your PF experience someday down the line? I never thought I’d want to be a writer, whether it was columns, news articles, a book etc, but I’ve found it very therapeutic. Something to keep in mind someday. There is a book coming out on PF by NY-times best selling author Kristan Higgins next year and I can’t wait to read it, she based a lot of the main character off of my story/IPF experience. Who knows, may be something I tackle some day! Thanks for sharing this with us 🙂
MemberMay 30, 2020 at 10:05 am
Hi all…saw that someone was reading the Outlander Series. Love those books and my hubby calls the TV program Scottish porn. I just finished watching season 5 and while different from the book, was still good. Been waiting not so patiently for the last of the series of the books as it has been postponed several times.
I also like Dan Silva he writes about spy for Israel during the Cold War. I know that it sounds old however the characters are amazing and follow through to today. I think I have read his whole series. Lots of twists and turns and keeps my mind busy.
Hope you are all finding your books distracting during these trying times
MemberMay 30, 2020 at 10:08 am
Hi @kathleen-hill-rainwater ,
I’ve heard nothing but amazing things about Outlander! Both the TV show and book, my friends and colleagues have raved about, so it is on my list. I’m not much of a TV watcher, but I am now hooked on the series How to Get Away with Murder…. I never thought I’d like it, but it is so good! Usually when I like a show, I am nervous to read the book and vice versa as they never seem to do it justice if I really like one to the other. Which do you recommend I do first with Outlander – book or show? 🙂
MemberMay 30, 2020 at 10:09 am
Love all these book suggestions! Thanks everyone for sharing… keep the recommendations coming!
MemberMay 30, 2020 at 11:48 am
Thanks, Charlene! I might consider writing about my own PF experience at some point, perhaps using a character to hi-lite symptoms like shortness of breath, fatigue, etc. Kristan Higgins’ book sounds very interesting. Let us know when it’s available.
MemberJune 2, 2020 at 7:54 pm
I will for sure @jgenesio, I am very excited to read it! I keep meaning to email her for an update on how the book progress is coming along, I may do that now. Would love to connect sometime in future about writing about your experience. I also know a physician who is looking for patients to contribute to a book he is writing, exciting stuff. 🙂
MemberJune 2, 2020 at 11:34 pm
Charlene – Is your physician friend writing about IPF? If so, I’d be interested in knowing if he has spoken with any who have found IPF runs in their family. My mother was diagnosed with exactly the same symptoms I have and I know there are pulmonologists who believe IPF is hereditary. Actually, the genetic angle might generate some very interesting dialogue on the forum.
Stay safe and well,
MemberJune 8, 2020 at 8:39 pm
I hope you’re doing well.
It is actually Noah Greenspan who is writing another book on pulmonary diseases. He’s written one already, which was great, have you seen it? If not, here is the link:https://pulmonarywellness.org/book/
I’m not sure if he touches on familial links to IPF but check it out. I am on the board of the Pulmonary Wellness Foundation and we have some wonderful NY-based MDs also on the board. I’ll try to remember to ask about any known genetic link, but like you, I have some physicians who say there is one as well. I’ll keep you posted. Have you done a quick search for studies on this? I’d be curious what you found if so, let me know 🙂
MemberJune 9, 2020 at 6:44 pm
I am a relatively newly diagnosed IPF patient. Diagnosed 29 January and on Oxygen and OFEV since about mid February. Like everyone, sitting home has been terrible and yet semi-productive. Books have been lots of people’s “work” for a lot of days.
During this time I became an official author by finally publishing a manuscript I wrote with pencil and yellow pad back in 1988/9. I had a publishing contract in the mid 90’s, but the publisher was sued and went bankrupt; it took me until 2001 to finally get the RIGHTS to my own book returned to me. I just never pursued publication beyond making copies of the manuscript for my family and friends to read. Everyone encouraged me to get it finally published. Finally in late April I was surprised when a Classmate notified our Class Forum that I had a book published! That built the fire under me and with the assistance of my daughter and son edited the rough manuscript and developed an 8-layered artwork cover design and I finally have an Amazon Self-Published Book out for reading on Kindle or as a 400 page soft cover book as of 13 April 2020. The finished product is as professional as any you would buy from a big book store!
Between 13 April and today my book reached the Amazon #1 Best Seller for the Vietnam War Category. The book title is “Sons of Kolchak” and tells the true story of an Infantry Company Company from a couple months before the Vietnam Tet Offensive of 1968 to the first battle with an NVA Regiment the night of 29/30 January and the following couple months. It is the meeting and re-meeting of large enemy forces and the actions of my men that make the story.
If you look up the book on Amazon, make sure you read the comments made by those who took the time to rate the book. It has held the #1 Best Seller position for 10 days now.
Reading for enjoyment is certainly one of the best things we can do during the Wuhan Virus Lockup!
MemberJune 9, 2020 at 7:49 pm
Hello Michael, thank you for sharing. Wow! What an accomplishment! I will be sure to pass this information on to the local AMVETS club I attend. I know many vets who would be interested in your book. My wife and me are also interested in war history. Thanks again, Mark
MemberJune 19, 2020 at 7:48 pm
Thanks to great support from all readers my wife’s book, The Jane Austen Society, has been at the top of the Toronto Star and Globe & Mail’s Canadian bestseller list for the last 2 weeks and #7 on the LA Times hardcover bestseller list. We’ve been able to support the Firestone Institute for Respiratory Health’s COVID Response Fund as a result.
Thank you and stay well.
MemberJune 21, 2020 at 9:40 am
How amazing is that Rob! Kudos to you and your wife! 🙂
Let me know if you ever want me to share it on the forums, making it more visible to members and potentially increase sales. I know some of us on this forum have personally benefitted from the Firestone Institute. Thank you for doing this.
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