If you have read my previous columns or other columns written by patients with idiopathic pulmonary fibrosis (IPF), you likely are aware that physical and mental fatigue is a major side effect of this disease. In my previous columns, I discussed how difficult it has been transitioning from…
While talking to a close friend recently, I was finally able to admit how much I am struggling with how chaotic life seems for everyone. Unfortunately, I cannot offer much insight into why I am struggling with this, but our conversation has led me to some theories as…
Photo by Kim Fredrickson I recently completed a pulmonary function test at my local hospital. This test was ordered by my doctor to measure how well my lungs take in and exhale air, and how efficiently my lungs transfer oxygen into my bloodstream. It is…
As we grow up and go through life, we adopt many different roles or identities that help shape who we are as a person, and in relation to others. Some of these identities are by choice and make us proud, while other identities happen involuntarily. Often, it can…
For animal lovers out there, it won’t come as a surprise that having a dog has been a blessing since being diagnosed with idiopathic pulmonary fibrosis (IPF) in early 2016. I often reflect on the timeline of when my dog “accidentally” became part of my life, shortly before…
Last week, I visited my pulmonologist at the University of California, San Francisco. I was a little nervous, because my last appointment six months ago was very discouraging. I had worsened significantly. This time, I got better news: no change since the last visit, which was encouraging. My…
By definition, a rhetorical question refers to one that seeks to make a point as opposed to seeking an answer. Lately, I have been asking myself rhetorical questions, and I am not expecting answers. But I am finding myself frustrated there are no answers. Most of these are…
As I sit down to write this column, I am wiping away tears of frustration. I hope that getting all of my thoughts down on paper will help. I’ll be candid: I am angry at my chronic illness. I don’t have time for it, and neither do the…
Last week, my husband and I met with a palliative care nurse. A few weeks ago, I shared in another column my frustration with seeking palliative care. Our meeting with this nurse was very helpful. I’ll share what I learned, and I hope it will…
Everyone diagnosed with a life-threatening disease or chronic illness can have a different experience as a patient. Many factors might cause this, including how involved patients are or want to be in their medical care, the expertise of their physicians, and how rapidly or invasive their disease becomes.
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