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Getting Used to Being Disabled as a PF Patient

After being diagnosed with pulmonary fibrosis, I resisted seeing myself as disabled. My disease progressed quickly, and within two months I needed to use supplemental oxygen whenever I moved around. I used a portable oxygen concentrator in my work as a marriage and family counselor, even though it…

Reflecting on My One Year Post-Diagnosis

April 7 has arrived just like any other day (as I expected it would), but it holds so much more significance and meaning for me now. After 13 months of testing and various appointments, it was confirmed that I had idiopathic pulmonary fibrosis (IPF) on April 7, 2016, which…

Options for Portable Oxygen Use Away from Home

Last week, I shared my thoughts about different oxygen options to use at home. This week, I’d like to pass on what I’ve learned about different types of portable oxygen possibilities to use away from home. The suggestions I’m sharing are based on my own experience, and I…

Options for Supplemental Oxygen at Home

Over the last two-plus years I have become an unwilling expert on the ins and outs of supplemental oxygen. When I started using supplemental oxygen I knew next to nothing and found it very hard to get the help and information I needed. I’ve learned a lot and…

Patient Advocacy: A Privilege or a Curse?

I had an experience last night in the emergency room that has left me thinking a lot. So I decided to turn my thoughts into a column — and I am curious to hear how those of you also living with idiopathic pulmonary fibrosis (IPF) feel about patient…

How Do You Counter Feelings of Helplessness?

For the friends and colleagues who see me regularly, many of you know this week was particularly challenging for me. In addition to recovering physically from my latest medication dose and being sick, I also was dealing with the emotional swings of the steroid injections. My puppy…

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