Everyone diagnosed with a life-threatening disease or chronic illness can have a different experience as a patient. Many factors might cause this, including how involved patients are or want to be in their medical care, the expertise of their physicians, and how rapidly or invasive their disease becomes.
Columns
For those of you who know me personally, you likely are aware that I am excited about an upcoming trip to celebrate my 30th birthday. More than the fact that it’s my birthday, I am looking forward to this trip because it not only is a vacation from…
It likely wouldn’t surprise anyone to hear that after being diagnosed with a life-threatening illness, there are many things about which a patient might feel differently. There also are changes both internally and externally that a patient will endure. These can be grander things, such as the way…
In my more recent columns, I have been writing about wrestling with end-stage pulmonary fibrosis and sharing my experience with seeking palliative care. As you can tell, I like planning ahead to take care of my own needs and the needs of my loved ones. My…
Since the beautiful season of fall has embraced us in southwestern Ontario, so has cold and flu season. Between the seasons changing and the kids going to school, there is an entirely new environment to breed germs, and I am hearing of more and more people catching a…
As the seasons slowly change here in Southwestern Ontario and we welcome the beauty of fall, I can’t help but reflect on this past summer. It was filled with some happy memories, but also hard times as my disease progressed and my lungs struggled with the heat and…
I recently met with someone to talk about palliative care. I’m here to share my experience in hopes it will help you, too. My last column about end-stage PF had thousands of views and LOTS of comments, which shows how important it is to talk about these…
I am sure there is some underlying rule that a patient will have some type of pain when diagnosed with a chronic illness. Either that pain will come from the disease itself, or it will be a secondary symptom of it, such as inflammation, sore muscles, etc. Until…
Those of you with idiopathic pulmonary fibrosis (IPF) likely have had to use supplemental oxygen. If so, you likely are aware of how labor-intensive it is to obtain and maintain oxygen equipment, and of the importance of using it safely in a variety of situations. These are things…
One of my frustrations as a pulmonary fibrosis patient is finding solid information about what to expect as my PF progresses. I’ve asked several doctors what to expect during the end stage of PF, but often get the same answer: “We’re not there, no need to talk…
