It only takes a moment for someone to Google pulmonary fibrosis (PF) to discover a list of unpleasant symptoms that accompany this disease. Some of the most common symptoms include shortness of breath with exertion, dry cough and fatigue. As you may imagine, there are many other…
Living with IPF — a column by Charlene Marshall
None of us enjoy being in the hospital. However, for a patient with pulmonary fibrosis, it is inevitable that you will have to spend time admitted to the hospital. I find hospital stays very overwhelming. I often feel overly emotional, but do not understand why I shed so…
I have always enjoyed doing things on my own, and valued my independence while growing up. I want to continue to be as independent as possible for as long as possible. As a result, I find asking for help very difficult. This is partially due to not knowing how…
As the weather gets warmer here in Canada and everything begins to bloom for another year, it means summer is just a few weeks away. Summer has always been my favorite season. I love the warmth it brings because I despise being cold. I also love the…
Throughout my childhood, adolescent years and most recently young adulthood, I have been my toughest critic. I openly admit to that, and have had a strong desire to always want to do things to the best of my ability. I will repeat an activity or task until I have…
Since being diagnosed with idiopathic pulmonary fibrosis (IPF), it has been interesting to observe how certain movie quotes seem to have much more meaning than they did prior to my diagnosis. I tend to watch movies these days seeking out characters who can relate to what it…
When you are diagnosed with a life-threatening illness such as pulmonary fibrosis, it is inevitable that you will feel the need to ask some big questions. Dreaded questions like “Why me?” “Why did this have to happen?” “Am I going to die?” and “How long do I…
Throughout this yearlong journey with idiopathic pulmonary fibrosis (IPF), to which I am an unwilling participant, I have often spoken with others about the benefits of having something positive to look forward to. Knowing something good is on the horizon helps in coping with this disease — whether…
I had a frightening incident happen the other day that has left me a lot more protective of my oxygen tank, where I leave it and how often I keep an eye on it when interacting with others. Despite living with rapidly progressing idiopathic pulmonary fibrosis (IPF), I…
April 7 has arrived just like any other day (as I expected it would), but it holds so much more significance and meaning for me now. After 13 months of testing and various appointments, it was confirmed that I had idiopathic pulmonary fibrosis (IPF) on April 7, 2016, which…
