Charlene is a fiercely independent 30-something year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.As a patient living with idiopathic pulmonary fibrosis (IPF), it is inevitable that my dependency on others will increase as my disease worsens. This is something I have had to come to terms with since being diagnosed nearly two years ago. Since then, my independence has been threatened…
Living with idiopathic pulmonary fibrosis (IPF) can be exceptionally difficult regardless of age. While a number of commonalities exist among people with various types of lung diseases, including IPF, there are also a number of differences that are unique to the age of the patient living with…
As a continuation of my “Gratitude Miniseries,” a monthly column highlighting the things I’ve enjoyed over the past four weeks, I am happy to report that May was a better month for me. As I shared in my previous column, April was tough, and although…
Patients living with a life-threatening lung disease might struggle to breathe in humid weather. However, since each patient’s condition is unique, some people living with IPF find that humidity isn’t as bothersome as frigid temperatures are for their lungs. Following my IPF diagnosis, my pulmonologist gave me advice on…
It’s really difficult for me to hear from others that they understand what I am going through. Despite the motive for this sentiment usually being supportive, I struggle to accept the words, because unless they also have IPF, others do not understand what I endure. I certainly…
Having to deal with difficult days is inevitable for patients with idiopathic pulmonary fibrosis (IPF). The difficulty may be physical in nature, meaning our lungs cause us trouble. This complicates basic tasks such as taking a shower or getting dressed. Sometimes a medical appointment reveals bad news,…
If you’re a social media user, you’ve likely had a laugh or two at the many different memes that circulate on Facebook or Instagram about life being difficult as an adult. My favorite, and one that always makes me laugh, is an image of a French bulldog lying…
Person-first language is a concept that has been around for many years. However, the general population does not prioritize it in everyday language. I don’t believe that people deliberately use disability- or disease-first language, such as “autistic child” or “PF patient.” Rather, I believe person-first language is…
For as long as I can remember, I have always been passionate about traveling. While this has become more difficult since my idiopathic pulmonary fibrosis (IPF) diagnosis, I am grateful that it is not impossible. Having to pull an oxygen concentrator behind me wherever I go was not…
A recent discussion in our new Pulmonary Fibrosis News forums was about quiet hobbies that are beneficial for patients living with idiopathic pulmonary fibrosis (IPF). As the forum’s moderator, I shared a post about my own quiet hobbies and asked patients to share some of the relaxing…
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