Since I was diagnosed with idiopathic pulmonary fibrosis (IPF) in April 2016, I have enjoyed connecting with other patients living with this life-threatening lung disease. For the most part, hearing others’ stories has given me comfort, hope, and encouragement. I believe that the benefits of connecting with my…
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I don’t know about you, but I’m continually aware of my limited time on this earth. Using my time wisely is very important to me. I’ve been working on several goals that have been a challenge to finish. I thought I’d share one I recently completed and what…
As I reflect on this past month, I am happy to share that October has been filled with many good times and memories for my loved ones and me. As we’re only a couple of months away from wrapping up 2018, I look forward to reflecting on this…
My 95-year-old father died last week. He’d been battling cancer on and off for the last eight years. He was a wonderful father and grandfather. I’m so blessed to have had him as my dad for so long. I miss him so.
As news of a life-threatening illness diagnosis makes rounds in a community, it is common for people to ask the diagnosed patient, “What do you need?” This question can spark anxiety in patients, especially in the first few weeks following their diagnosis as they adjust to a new reality. After…
One of my all-time favorite quotes about kindness is: “Everyone you meet is fighting a battle you know nothing about. Be Kind. Always.” I liked this quote, which can be traced to Scottish author Ian Maclaren, before my 2016 diagnosis of idiopathic pulmonary fibrosis (IPF). Kindness should…
As PF progresses, it is wise to address how long to keep working. It is common to wonder: How do I know when to stop? When is work harmful to my health? Can I make it financially? How do I obtain disability or early retirement? These are…
I have noticed a difference in myself over the past few months. I believe this new attitude is beneficial for my physical, mental, and emotional health. I have been prioritizing my needs and not feeling guilty about doing so. I encourage everyone to live and work this way,…
Living with any life-threatening illness is difficult and brings many changes, both to the patient and her family. Following my diagnosis of idiopathic pulmonary fibrosis (IPF) in early 2016, my doctor talked about the physical changes I should expect. What the doctor didn’t mention were the other —…
A pulmonary fibrosis diagnosis is difficult, to say the least. You need kindness, not just for others, but also for yourself. It helps to be compassionate with yourself during the stressful, scary, and difficult times. Talking to yourself with kindness is a powerful form of self-compassion. Kind truths…
