Hello PF friends! I would so appreciate your input regarding a heartfelt project I’m considering. For about a year I’ve been pondering finishing a book to help patients like me deal with being diagnosed with a terminal illness. I started this book a year ago but set it…
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Since being diagnosed with idiopathic pulmonary fibrosis (IPF) in early 2016, I’ve had to ask for or accept help on multiple occasions. I am always appreciative of offers of help following an acute event such as an exacerbation, illness, or prolonged hospital stay due to my poor…
For patients living with a life-threatening illness, adjusting to change and reevaluating our abilities is an ongoing task. This is because the progression of our disease causes physical limitations and restrictions and our values may change over time. When our physical capabilities change, it is important to consider…
e With summer in full swing, I’ve decided to enjoy the special things about the season. I’m trying to be intentional about relishing the good things, instead of going into automatic mode — just surviving every day. Summer food Boysenberry Cobbler (Photo by Kim Fredrickson) My…
This is a difficult column to write because I have always enjoyed doing things for other people. However, since my diagnosis of idiopathic pulmonary fibrosis (IPF) in April 2016, I have had to learn the hard way that sometimes I need to put myself first. Lately, I am…
There are many different memes, quotes, and metaphors out there about how different personalities make us all unique. I am sure you can think of people you love who are entirely different in their personalities, and how each of them is skilled or excels at different tasks. They…
A scary moment I recently had a scare while in my backyard. I was cutting some ivy, an easy task I can do without bending over or digging in the dirt. I had a full tank of oxygen with me, and I was trimming on my back…
I’ve experienced increased sensitivity to comments, gestures, or unusual behavior from others since my IPF diagnosis. Sometimes this is attributed to the medications I take for the management of my disease, such as high doses of steroids. At other times, I feel increasingly sensitive because I am aware…
Many patients living with chronic illness are considered immunocompromised due to the medications they take to treat their disease. This means that their immune system is not as strong as people who are healthy and that they can fall ill more easily. A patient living with a chronic…
About two years ago I had a very touching experience. I had retired from my counseling practice of 30 years. I was part of a group of 10 wonderful therapists who were good friends as well as colleagues. Once a year we went on a retreat to a…
